Late summer fun: Sunflowers and ice cream

I was supposed to go to Maine the last weekend in August but I needed to take my cat to the vet. I thought something was wrong with him. He wasn’t acting like himself and I was sure something was wrong with him.  After paying my not insignificant vet bill, nothing was physically wrong him.

So now my cat is on prozac.

It’s for the best.

And I missed my trip to Maine and my 20th high school reunion. I thought about trying to swinng it but I was too tired to do 16 hours of driving in a 60 hour period

So I wound up with an unexpected free weekend.  My close friend loves Sunflowers and asked if I would be up for a drive downstate to a sunflower field. I am always ready for an adventure and I love road trips so I happily agreed.

I wish I had a selfie to share but not a single one looked good.  For real.  My daughter wouldn’t look at the camera and I had my hair in my face.

After we looked at the flowers, we went to a farm stand.  It was crowded.  My friend told me that she wasn’t expected it to be crowded because she has seen too many Hallmark movies.  In Hallmark movies there is a ton of space.  Hallmark movies have ruined her.

Though we both agreed that that won’t stop us from watching them this Christmas.

After the farm stand, we decided to drive into New Paltz and get some ice cream.   We went to Hugeunot Creamery.  The ice cream was delicious and the staff was very kind and friendly.  The kids had ice cream cones  with sprinkles. They wound up all over the floor.  Part of me felt bad but part of me figured that it’s bound to happen in an ice cream shoppe.  My friend had a creamsicle float and I had an old fashioned hot fudge sundae.

On the way back, we stopped at a Samuel’s Sweet Shop in Rhinebeck which is owned by Paul Rudd and Jeffrey Morgan.  The kids had lollipops (though my daughter could only handle a few licks after eating ice cream) and I had a pretzel covered in Reese’s Pieces.  My friend got chocolate covered oreos.

It was a great day.  I am so glad my friend asked us to spend the day with her and it was fun to discover places in New York where I had never been.  I can’t wait for some Fall adventures with my friends.

Do you like to go on day trips?  Where do you like to go?

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I can’t imagine

Today is one of those days that it is hard to write.  I struggle with what to say.  Nothing will be good enough.  It’s hard to write about the little things going on in my life after seeing all the footage of Hurricane Harvey in Houston, Hurricane Irma in Florida and with the anniversary of September 11.  I feel like nothing I say can do any respect for the these events or the people that these events have affected.

There are two things my mind travels to when thinking about these events.  One is empathy. I have been trying to put myself in those people’s shoes.  I have lived in the Northeast for all but 6 months of my life (3 months in England, 3 months in Southern Indiana-they called it Kentuckiana) and we do have some crazy weather here.  I have lived through hurricanes and blizzards- Hurricane Gloria, Hurricane Bob, Hurricane Floyd, Hurricane Irene and of course, the Ice Storm of 1998.  

I have had my world fall apart but I have never lived in a place where I had to evacuate my home.  I have never felt the agony of wondering if my home had been destroyed.  I have never had to decide what few possessions to take at a moment’s notice.  I don’t know what I would grab after my daughter and my cat. I have never been in a situation where all my belongings and memories were destroyed.  I have never been in a situation where my whole neighborhood was flooded.

I have never lived in a war zone.  I have never lived in a place where I saw buildings go up in smoke.  I have never lived not knowing if a loved one was alive.

I truly can’t imagine.

The other thing that has been on my mind and heart is the fact that as Americans we can be so hostile to each other.  Seriously, who cares what political party people belong to or what religion they are?  Or if they even have a religion?  Or what they’re income is?  We are so divided but whenever there is a disaster, we come together.  Why can’t we be like that all the time?  Why do we have wait until people’s lives our destroyed to show them kindness?

Little moments

This weekend I did the first of my long runs for my half marathon training.  My training cycle has gotten off to a slow but steady start.  I have joined a new gym called Metabolic Meltdown and I do those workouts on Monday, Wednesday and Fridays and I run on Tuesday, Thursdays and Sundays.  I was having trouble motivating myself by just running and I need more strength so I hope this plan works.  So far I have been enjoying it.

So on Sunday I took my daughter to the local university and did the 3 mile loop around campus, plus one extra mile.  

It was the longest four mile run I have ever done.

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First of all, since I have slacked off on my training, I gained weight and I was pushing a stroller with my almost 3 year old.

It was hot.

My daughter kept dropping things and I kept having to stop and pick them up.

I didn’t want my daughter to fall asleep on the run so I kept her entertained by singing Old MacDonald since we watch OutDaughtered all the time.  OutDaughtered is the show about two year old Quintuplets.  My daughter refers to the show as “Babies.”  All I hear is “I want to watch Babies!”  Anyway, there is an episode where they are singing, or supposed to be singing, Old MacDonald in a recital.  So my daughter and I sang Old MacDonald and my daughter kept choosing “chicken” so this Old MacDonald had a farm full of chickens.  Old MacDonald can thank for me sneaking in one cow and one cat.   

My daughter saw one of the Albany city busses and kept saying ice cream truck.  I told her it was a city bus, but she wouldn’t believe me.  I told her she would disappointed if we went over and tried to order ice cream.

But I made it through the run.  I think when I reach the six mile mark on my long runs that I will need to get a babysitter.  I can’t be pushing the stroller for 8 miles.  I will go nuts.

I was really wanting to get an iced coffee but I decided to stop and let my daughter run around the fountains.  She was so happy which made me happy.  Life is about the little moments.

My one fun night in New York City

 

Bryon spent the last two and a half weeks of his life in New York City.  I had him moved from our regional medical center because he needed better care.  It was two of the most optimistic and the most scariest weeks of my life.   I was optimistic because he had a world class medical team caring for him.  I was scared because he was still very sick and I knew that even if he survived, the road to recovery was going to be complicated.

I don’t usually think about my time in New York.  I mean, it ended with Bryon dying.  

Yesterday I was reading about how one of my blogging friends spent her birthday in NYC.  She spent part of her day in Washington Heights, which was the part of NYC where Bryon’s hospital was located.  

It dawned on me that I can’t ignore New York City forever.  Someday I will  have to return.  I may want to take my daughter to see the Rockettes or take her to the Natural History Museum.  Or the Bronx Zoo.  Or maybe I would go with my Spanish teacher friend to find an Argentinian restaurant.  Or to see The Bangles with Kimmy Gibbler and my Latin Teacher friend the next time they go on tour.  It would be ridiculous to avoid a whole city for the rest of my life because of what happened.  I will probably just avoid Washington Heights.

So I was reading my blogging friends birthday post and then I was on Facebook.  I checked “On This Day” and sure enough, it was a post about the one fun thing I did during those two and a half weeks.

My daughter’s Godmother came down with her (now) fiance and got hotel rooms in the Times Square area.  She was telling me all about the city as we drove downtown.  I am a small town girl from Maine after all.  We had dinner at a Mexican restaurant.  It was my one fun night in New York City.

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Margarita
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Tacos
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Seinfeld restaurant
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View from the hotel room

Though there were other good things about being in the city.

I had a family to stay with.  They didn’t even know me but they knew Bryon.  They welcomed me into their home and they were so kind to me.  They stay ended up being short but had Bryon survived, he might have been in the city for months.  They never once gave me a time limit.  I know they were rooting for the slow recovery.  It would worth a trip to NYC to see them and have them meet my daughter.

Bryon’s friends in NYC got to see him.  That was great.

The team was much more optimistic and Bryon’s spirits were the best they had been through the whole ordeal.  In Albany, Bryon was too depressed to facetime with our daughter, but in NYC, he was happy facetiming her.

Bryon still had his sense of humor.  It took me a week to figure out that I could take the express train to get to the hospital faster.  He shook his head and rolled his eyes at me.

But right now, NYC remains the city where Bryon died.  Maybe someday I will return but it probably won’t be anytime soon.

Recharging: Hiking at Thatcher State Park

Yesterday morning Kimmy Gibbler asked me if I wanted to go on a hike with the kids to Thatcher State Park.  I was game.  I had never been to Thatcher State Park but I have always heard it was a lovely place to visit.  My local blogging friend Melissa recently visited Thatcher Park and wrote about her trip.

I just had to make an emergency stop at Target to get a pair of sneakers for my daughter because I think I might have left them in Chicago.  Once we got a new pair of sneakers, (and some fruit snacks and some juice boxes and some bottles of water) we were ready.

We didn’t hike long or anywhere steep because we had small children with us, but it was still a really fun outing.   I look forward to many more!

Do you hike? Where do you like to hike?

 

The start of our love story 

July 31, 2008
Somewhere in cyberspace

Bryon: cool

  when are you coming in tomorrow?

4:59 PM me: Depends on when I wake up and get on the road 🙂

 Bryon: lol

5:00 PM me: I actually wish I had known this was going to happen. I originally wanted to take tomorrow off and come out Thurs and go to Cooperstown on Fri

  But it was not meant to be. No baseball hall of fame for me

 Bryon: its not that great.

5:01 PM me: overated?

 Bryon: yeah. but I havent been in a few years

5:02 PM me: Thanks for crushing my hopes…

 Bryon: thats me though, you may like it

  you should come out early tomorrow and go.

5:03 PM Its not far from albany

 me: I doubt it

 Bryon: doubt which part?

 me: Isn’t it like an hour away?

 Bryon: yeah.

 me: I doubt I will want to drive another hour after driving 8

5:07 PM Bryon: I would be interested in going again, I would go, and drive.

 me: But’s it’s lame…. 🙂

 Bryon: yeah but there is a great brewery in cooperstown

 me: so the truth comes out…

5:08 PM Bryon: lol

 me: when would I have to be out there if I were to do that?

5:09 PM Bryon: whenever, Cooperstown is an hour from albany, I have a meeting until 1, so whenever you would like.

5:11 PM me: Mapquest says it takes 7 hours and 23 minutes to get from Surry, ME to Albany, NY

  When does the baseball hall of fame close?


16 minutes

5:28 PM Bryon: sorry i was away there

  

  the hall closes at 9

5:29 PM me: I figured that out. Went to the website.

  I am used to Maine, where things close at 5

  🙂

 Bryon: that is why NY is better

5:30 PM me: If you say so…

5:31 PM Alright, I will plan to be out there around 2 or 3. That way I don’t have to get up at an ungodly early hour

5:32 PM Bryon: sounds good

​This is the conversation that led to our first date, brought to you by gchat.  What can I say? We are representative of the social media age.

I always teased him about this conversation, about how the Baseball Hall of Fame was lame until I said I wanted to go.  Bryon never tried to hide the fact that it was me he wanted to see.

 *  *  *

August 1, 2008
Cooperstown, NY
Albany, NY

Nine years ago today I went on my last first date.  I was a Maine girl in New York and her “friend” took her the Baseball Hall of Fame in Cooperstown, NY.  At first there was a work scheduling conflict but it ended up working out.

After going to the Baseball Hall of Fame, we weren’t ready for the date to end. So we had dinner at The Pump Station.  The after dinner, we weren’t ready for the date to be over so went to Mahars.  Then Lark Tavern.

August 2, 2008
Saratoga Springs, NY

Bryon and I were at the New York State Young Republicans Day at the Races.  We spent the day avoiding each other because we didn’t want anyone to know that something was going on between us.  But we snuck away to the paddock for some time alone together.

 *  *  *

August 3, 2008
Albany, NY

I say good-bye to Bryon.  I was sure this was going to be a fling.  None of this made sense.  He was seven years younger than me and lived three states away.  I mean, he just graduated from college and I was almost 30.

But love had other plans.  And we never looked back.

 

A conversation with NFL player and patient advocate Rolf Benirschke

Earlier this week, I had the opportunity to attend an event with NFL player and patient advocate Rolf Benirschke.  This event took place at the New York State Capitol and was put on by GOBOLDLY and New York Health Works.  The event was attended by a diverse group of people including legislators, legislative staff, researchers, pharmaceutical company representatives, representatives from healthcare organizations and patient advocates.  I was excited to have the opportunity to attend this event.  I am trying to learn as much as I can about health care and patient advocacy.  I attended this event with one of my best friends, Jen.  She is the New York State and Vermont Advocacy Director for the National Multiple Sclerosis Society.

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The event opened up with NY Assemblywoman Crystal D. Peoples-Stokes (D-Buffalo).  She talked about her experience working with hospitals in Buffalo and how they collaborate with private companies who are working bringing the latest medical technology into Buffalo Hospitals. She also shared a personal experience about a friend with lung cancer who was receiving a cutting edge therapy in New York City that was developed in Buffalo at Roswell Park Cancer Institute.  

Rolf Benirschke was in his second season as a kicker for the San Diego Chargers when he was diagnosed with ulcerative colitis.  In his third season, he collapsed on a cross country flight and had to have two surgeries and spent 5 weeks in the ICU.  Like Bryon, he lost part of his intestine and went into septic shock and had organs shut down.  He came close to dying.  Rolf states that he didn’t know why his life was spared, but he was given a second chance.  He got his position back with the San Diego Chargers and played for seven more seasons.  

Rolf also stated that while he was in the ICU, he received 80 units of blood.  This was in 1979 when blood screening wasn’t as safe as it is today.  Rolf contracted Hepatitis C.   Rolf was given therapies for Hepatitis C which worked.  He expressed gratitude because he knew that he was lucky.  He brought up how Arthur Ashe contracted HIV from a blood transfusion that he received while having heart surgery.

It was inspiring to see Rolf share his story because the only way we are going to make positive changes in our healthcare system and patient care is by education.

We are living in exciting times when it comes to medicine.  My job is in oncology data and I see it.  They can test some tumors for the specific markers within that tumor and a patient can get a treatment based on their specific tumor markers.  I truly hope that diseases with a grim prognosis will be curable in our lifetimes.  

Jen and I got a chance to speak to Rolf.  We discussed barriers to patient care and we discussed part of Bryon’s story.  I encourage everyone to get out there and learn about the healthcare system.  You don’t need to work in healthcare to learn about it.  You never know when you need to apply that information for your own care or that of a loved one.

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