New York, New York

Anyone who knows me knows that I am a New England girl and Boston is my city.

 



But I do feel some shame when I think about how little I time I have spent in New York City even though I have lived in Upstate New York for almost nine years.

The first time I went to NYC was when I was a senior in high school in 1996.  My cross country team traveled from rural Maine and we ran a 5k in Van Cortland Park in the Bronx. We also saw Les Miserables on Broadway, went to the Natural History Museum, shopped at Macy’s and saw Trump Tower, the Plaza Hotel and FAO Schwartz.  We also ate a Bennigan’s in New Jersey. I loved all of it. I was amazed that NYC was so big and that it made Boston look like a small town.

My second time in New York City was December 2008.  I had been dating Bryon for a couple of months and we met in the city to attend the New York City Young Republican Club Holiday Dinner.  Bryon took me to see all the store windows decorated for Christmas. He also took me to see the tree in Rockefeller Center and that was the first place he told me that he loved me.

 

I returned a few more times that year.  I was still living in Maine and I was running for Northeast Region Vice Chairman of the Young Republican National Federation.  I would stay with friends and campaign around the Mid-Atlantic. Bryon would join me. The trips were fuzzy but I remember going to a bar called Stitch in the Garment District that had $20 drinks (Bryon didn’t let his status as a poor 1L in law school stop him from getting me drinks) and I remember walking by the Brooklyn Bridge with Bryon.

But I have only been to NYC four times since I moved to New York State 9 years ago.

The first was right after I moved here. Bryon and I drove to Queens to attend a cookout at a friends house.

The third time was in November, 2013.  I was pregnant with a baby I would miscarry later that same week.  Bryon and I took a one night cruise on the Norwegian Gem out of NYC and the following day we explored the city.  Only being pregnant, I was not good company. I was tired, had sciatic pain and could only tolerate eating saltine crackers.  I remember we had lunch at McGee’s Pub, which is the bar that inspired McLaren’s on How I Met Your Mother.  Then we saw Pippen at The Music Box Theater. I had wanted to see the Rockettes but Bryon really wanted to see Pippen.  He told me we would see the Rockettes the next time.

The next (and fourth) time Bryon and I would go to NYC would be when I had him transferred to Columbia Presbyterian and I temporarily moved down there.  A family who was friends with my daughter’s godmother took me in. I will always be grateful that they welcomed me, a stranger into their home and did everything they could to make me feel welcome even though we had no way of knowing how long Bryon’s recovery was going to take.

Aside from the one night where my daughters godmother took me to Times Square and to a Mexican Restaurant in Harlem on the same block as the Seinfeld Restaurant, I did not see much of the city. The family I stayed with lived in Hamilton Heights.  Every morning I would walk a block to the subway station, stopping to get an Iced Coffee at Dunkin Donuts. The hospital was one stop on the express (three on the local) away in Washington Heights and I spent my days in Bryon’s room in the MICU located in the Millstein Building.  The security guards knew my name. When I was hungry, I either got food in the cafeteria or I went to the Chipotle or Starbucks on the same block.

Since then, I have driven by NYC on a few trips where I have flown in and out of Newark, NJ.  We also drove by the city on our way to and from Philadelphia last month. I remember saying to my friends that I had not been to NYC since Bryon died.  I know there is so much that city has to offer. We had so many ideas of things we wanted to do with our daughter when she got older. I am thinking about possibly doing a weekend trip next fall.  I want to take her to see the Rockettes. We will see if I am ready.

I think it is safe to say that if I visit NYC again, I will be avoiding Washington Heights.

So now that I have gotten all that out of the way, I will get to the point of this post.

I am choosing to remember Bryon and our second trip to NYC.  

It was May 2011. Seven years ago.  I was pissed at Bryon because we never went to the city.  So he did what any good boyfriend would do.  He took me down to NYC.  And typical to his zest for life, he packed a lot into that one day.

So he took me to the city.

We drove downstate and took the Metro North train into the city.  We arrive in Grand Central Station.

We went to the Top of the Rock.

We then went to Chinatown where I may have bought an “imitation” Coach purse.  Bryon was dissapointed that I wouldn’t go into the places with a back room. It scared me.  Bryon normally couldn’t care less about purses, but when it was time to haggle, he jumped right in and haggled with the lady.  Even though I was paying, he wasn’t satisfied with the price given.

Bryon then took me to McSorley’s.  McSorley’s was an experience.   It is the oldest running Irish Tavern in NYC.  You have two choices of beer, light and dark and you order them in increments of two.  We ate the cheese platter which consisted of cheese, saltines and raw onions.  The place is full of history but the best is the legend of the wishbones.  the legend is that when the soldiers went to war during WWI, they put a wishbone up above the bar and took them down when they returned.  So the wishbones that remain memorialize the soldiers that did not come home.

After McSorley’s, Bryon took me to a dish shop called Fishs Eddy.  I don’t remember it being the best place to be when you were tipsy.

Then we went to Little Italy.  We had dinner at a pizza place and then went somewhere else for cannoli.  I have no idea the names of the places we went.

We finished the night at a hidden bar above a Five Guys.

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A city with so many memories.  A city that I will always associate with Bryon’s death.  A city that Bryon planned on taking our daughter at Christmastime.

I need to decide if I want to take my daughter down this fall.  It would be a shame to not take advantage of all the city has to offer.  Nothing in life is definite and if I were to leave the area, I would probably kick myself for not going down there.  So now I need to decide, Rockettes or the Natural History Museum or both….

Have you ever been to New York City?  What is your favorite thing to do?

The day I found my voice

This was the first piece I wrote as a widow.  It was a Facebook note called “A Mini-Memoir”.  I wrote it one year ago.

* * *

Bryon McKim took me by surprise.  Those close to us know that the first time I met him was in November of 2006 in Louisville, Kentucky.  2006 was a bad year to be a Republican and I learned that because I lost my race for the Maine State House. (At least I won my hometown. Thank you Surry!)  The weekend following the election was the Young Republican National Federation (YRNF) Board Meeting in Louisville.  I first met Bryon at the Northeast Caucus.  I was the only Mainer in a room full of New Yorkers and there was one in particular that would not shut up when I was giving my report on Maine.  And we all know that that New Yorker was Bryon McKim.  He didn’t make that much of a lasting impression on me except that I thought he was rude even if everyone from New York thought he was hilarious.

Our story really began in the beginning of the 2008.  I was coming to a New York State Young Republican (NYSYR) event to try to build bridges between the NYSYR and the Maine Federation of Young Republicans (MFYR) of which I was the State Chairman.  New York and Maine had been on opposite sides of the previous YRNF election and our relationship was not good.  I was nervous about the reception I would be receiving so my best friend Tiffany came from Chicago (Illinois and New York had been on the same side of the previously mentioned election but it did not affect the friendship between Tiffany and me.)  It turned out that I didn’t have anything to worry about.  All the scary New Yorkers were perfectly nice to me.  I noticed one person who seemed to be in charge so I went up to him and introduced myself, “Hi.  I am Kerry Sullivan, Chairman of the Maine Federation of Young Republicans.”  He responded with “I know.  We met in Louisville.”  Then it clicked.  He was the a-hole that wouldn’t shut up when I was talking.  Luckily after a year and a half, I seemed to be (mostly) over it.

Over the course of the weekend, Bryon began to try to get my attention.  I thought he was nice enough but I was aware that he was several years younger than me so despite being flattered, I kept letting him down, albeit gently.  I told him I was too old for him.  He didn’t believe me.  At one point, I pulled out my drivers license.  I do remember him staring at it in disbelief.  I definitely liked him but I was not looking to fall in love, especially with a younger man who lived eight hours away.

Heck, at that point in my life, I didn’t believe in love.  I was also told that I was too picky.  I  had a list of ten items.  Funny this is, I don’t remember all ten items.  I would tell people my top 3 (Republican, Catholic, Red Sox fan) and I was told that was not reasonable especially in Maine.  There are Red Sox fans, but not many Republicans or Catholics.  I know number 4 was Irish.  (That was a bit of a stretch as Bryon was only 1/8 Irish.  I guess it didn’t end up being that important.)  I do remember two of my other items on my list.  One was that I wanted a man to be intelligent.  Preferably more intelligent than me because I like to surround myself with smart people and I like to learn from those around me.  And I like personalities with a lot of depth to them.  I  wanted a man who could go to the symphony and a wine tasting one night and a baseball game with hot dogs and beer the next night.  I wanted someone who wouldn’t be bored with Museums and historic places.  Someone would wanted to do interesting stuff but also the simple stuff. I was told that those two points are not reasonable.  I knew what I wanted and I didn’t want to settle.

Anyway, I digress.

For the next six months, Bryon and I started to get to know each other better.  First through google chat (I think it was called g-chat then) and then we went to the next level and started texting.  Serious stuff that involved actually giving each other our phone numbers.  He convinced me to come out for the NYSYR day at the races.  I agreed and I decided to come out a day early to go to the Baseball Hall of Fame in Cooperstown.  I asked him what he thought of the Baseball Hall of Fame and he said it was lame.  I said that was a shame because I was hoping to go and surprisingly, out of the blue, Bryon changed his mind and said that it actually wasn’t lame and that he would take me.  So we went to the Baseball Hall of Fame.  After visiting the Hall of Fame, we weren’t ready for our date to be over so we decided to head back to Albany for dinner at the Pump Station.  Then that turned into drinks at Mahars and then Lark Tavern.

The following day was the Day at the Races.  We didn’t want anyone to know we were a thing so we spent the day on opposite sides of the group.  We acted like we barely knew each other except we did sneak off to the paddock at one point.  I left New York not sure what was going to become of us.  He was younger and lived eight hours away.  Neither of us wanted a long distance relationship.  But our relationship only seemed to get stronger.  Our communication changed from text messages to actual phone calls.  Nightly.  I remember having to put my phone on speaker and hold it a certain way or else I couldn’t hear him.  Cell phone reception in rural Maine wasn’t that great.

We made plans to meet up in Boston on August 29th, the day between our birthdays.  I called him up to wish him a happy birthday on the 28th.  He had been out celebrating.  He told me he was young and hot like Sarah Palin and that I was old like John McCain.  (Remember, it was 2008)  Yet I still went to Boston the next day.  I had fun recounting that conversation to him as we rode the Red Line into Boston.  He made it up to me though.  He took me to a Red Sox game on my birthday.  If that isn’t love, then I don’t know what is.  And it was that weekend that I realized that this wasn’t just a passing fling.  It was the real deal.  I never would have known that weekend that almost exactly eight years later, I would be attending his funeral.

It’s easy to be negative.  Some days I struggle to stay positive.  Some days I am not positive at all.  Other days I am almost optimistic that despite this sad chapter, I might actually still have a good second half of my life.  The reality is that right now I feel lost and like an empty shell of who I used to be.  I feel like I am going through the motions.  I hate the term “new normal” because I hate that I have to find a new normal.  I was perfectly happy with my old normal.  I am one of those people who likes to have a 1 year, 5 year, 10 year plan.  It may not be detailed but I liked being able to look down the path I was anticipating and have a general idea as to what was going to happen.

I didn’t know exactly what was going to happen in our planned future but Bryon was there.  The other child (or children if I got my way) would have been there.  We went from being a family of three with plans of being a family of four to a family of two.  Now it’s just Maddy and me.  I don’t even know if two people fit the definition of a family.

Bryon had all these plans he wanted to do when Maddy was older.  He will never take her to a father-daughter dance.  He will never make her dates nervous.  He will never get to play catch with her or teach her how to ice skate.  He won’t ever take her to a Broadway play.  He won’t walk her down the aisle when she gets married.  He won’t take her on the proper Disney trip he was planning.  We spent a day in Epcot last February and we went to a character breakfast, but not the fancy, expensive Princess one.  Bryon said if he was going to spend that kind of money, he wanted Maddy to be old enough to enjoy it.  I know I can take Maddy to Disney but the thought of being in the Happiest Place On Earth without Bryon makes me cry.  And I am not sure that is allowed.  It’s like a sick and twisted joke.  He did this to try to be healthier for himself and Maddy and then this happened.

We would have taken a lot more cruises.  We would have eventually hit all the Caribbean islands.  I would have continued to lobby for an Alaskan Cruise and Bryon would have continued to say that an Alaskan cruise sounded boring. (We had two cruises booked.  I cancelled one and pushed the reservation out on the other.  I don’t know when I will be ready to cruise again, if ever.)   We had plans to someday go to Scotland, Ireland, England and Germany.  He wanted to go to a Chelsea game in London.  He wanted to visit the Scottish Highlands where the Fraser clan originated.  He wanted to buy a BMW in Germany, drive it around Bavaria for a week and then have it shipped home.  He said something about avoiding some sort of import tax that way.  I am not sure.

We would have probably outgrown our current house pretty soon and would have moved somewhere bigger.   We’d probably would have argued about that house.  I would refuse to live in a ranch house or a house built after 1950.  Bryon would probably tell me I was being too picky.  I would  have dug in my heels on hardwood floors as opposed to wall-to-wall carpeting and Bryon would have eventually agreed with me because he would know I was right.  Bryon would have held firm that we would never have a swimming pool, trampoline or a swing set because they are liabilities.  I would have pushed to live in the country and Bryon would have probably said there was no effing way he was going to live in a place where he would need to buy a gun because of wild animals.

Now that has been ripped away.  I look at my future and all I see is nothingness.  I know it will be filled with new adventures and of course, time with Maddy but I don’t like not knowing what to expect.  I thought I had my life figured out.  I am not good at this “one day at a time” thing.  Not only do I  have have to mourn the death of my best friend and the love of my life, I have to mourn the loss of my future.  I know an optimist would tell me that my future is a blank canvass and I can color it any way I want.  Perhaps that is true but I didn’t ask for a blank canvass.

I also have to figure out who I am as an individual which is a daunting task.  The Kerry McKim that was Bryon’s wife, no longer exists.  I am not the same person I was on March 24, 2016.  My life forever changed when Bryon was admitted to the Surgical ICU on March 25.  I will never go back to being that version of Kerry McKim again.  The truth is, there are some aspects of who I am that got pushed to the back burner during my time with Bryon.  It wasn’t intentional.  He just always had ideas and sometimes my ideas went to the background.  And I let that happen.  He didn’t do it on purpose, though it did cause tension in our relationship at time.  Of course, now I am glad that I got out of the way and let Bryon accomplish what he needed to do since his time on Earth was limited.

Now I do get to do the things that Bryon never wanted to do.  I like to do boring things like take drives to check out scenery and Bryon couldn’t stand that.  To him, there was no point. I could go on an Alaskan cruise if I wanted or to a National Park (Bryon had no interest in going to the Grand Canyon even though I told him pictures don’t do it justice.)  I can live my life at a slower pace.  It could sometimes be exhausting keeping up with him though it was exciting.  I loved every minute of it.

However, I don’t revert back to being Kerry Sullivan either.  Kerry Sullivan was a young girl who was bored and wanted “more.” Bryon changed my world.  He challenged me.  He encouraged me.  He believed in me.  I am tasked with taking the best parts of being Kerry McKim and the best parts of being Kerry Sullivan and make them into some sort of newer version of Kerry McKim.  I just don’t want to be viewed as Old Widow McKim.  While I am definitely a widow, I don’t want it to define me.

So where does that leave me?  Everyone talks about stages of grief.  Personally I think stages are bullshit.  The first one is supposed to be denial.  I was never in denial that he died.  I watched him slowly die for five months in the ICU.  I can tell you that he never gave up.  He fought until the bitter end.  I think almost anyone else would  have given up long before but he kept fighting.  While he could communicate, he obviously couldn’t express himself fully and I can’t imagine what it must have been like for him to have to lie in a bed for five months, not being able to move and having to be dependent on me or a nurse for simple tasks like changing the channel on the TV.  He had his mind up until 36 hours before he died.  It must have been hell for him to be lying in that hospital bed without being able to articulate his thoughts.

The second stage is anger.  Well of course I am angry but that will be another post for another time.  Third stage is supposed to be bargaining?  Bargaining for what?  He’s not coming back.  Then desperation.  Again, he’s not coming back so I don’t know what there is to be desperate about.  The final stage is acceptance which is probably the only stage that makes any sense.  I don’t even know what it means to accept that he is dead.  I know he is dead.  I know because all the tasks he did are now my responsibility.  (I am beginning to wonder what I even brought to the table?  I think all I did before was change diapers and make sure there is milk in the fridge.  And I wasn’t even that great at the latter.)  I know he is dead because once in a while I think about something to ask him something and then I remember that there is no point in texting him because he isn’t going to answer that text.  I know he is dead when I am watching one of our TV shows and they make a joke that he would have found funny.  He isn’t there to laugh.  He wasn’t there to discuss the issues surrounding the election.  I know he is dead every night when I lie in bed alone. Even though I know he is dead, there are times where I think about certain memories where he was so full of life and then I think about him being dead.  Then it hits me me- the pang of disbelief.  Disbelief that someone so full of life can be gone.  That realization always takes me by surprise.  It stings.  Every time.

I also have to accept that even if he had lived, our future would have not been what we planned.  He would have had some long term medical problems.  Doctor visits to NYC or Boston would have become the norm.  We certainly wouldn’t be traveling on cruise ships in the middle of the ocean far away from American hospitals.  Before this crisis, Bryon liked to take care of everything.  It was as if his goal was for me to never have to worry about anything.  I am not going to lie, I enjoyed that and took full advantage of that.  I was thrust into the caregiver role and even if he survived, he would have been sick for a very long time, possibly for the rest of his life.  The carefree days would be over but I would have continued to fight for him.

Maybe this is some sort of “post acceptance” processing.  I know he is dead.  He is never coming back at least in any human form.  Some widows get upset about “being left behind.”  I am not.  I don’t want to be in Heaven or wherever spirits go when in the afterlife at least not until it is my time.  I want to be here and with Maddy.  But I am, in a sense, left behind to try to make sense of what happened.  I ask myself why at least once a day.  Why did this have to happen?  And why did it have to happen like it did?

Then there are all the other questions.  Did I do something wrong?  Did I miss something?  Was I not paying attention to something the doctors said?  Why would God let something like this happen?  What did we do to deserve this?  Why does Maddy have to grow up without her father?  When will all this pain go away?  When does it start getting easier?  When will I start to feel like myself again?  How can I feel like myself when I don’t even know who I am as an individual?  How much is Maddy aware?  Does Maddy even remember him?  Will Maddy grow up feeling cheated?  Can I give Maddy a happy life without her Dad?

So many unanswered questions.

The only question I can answer is- would I do it all over again even with the same outcome?  That answer is yes.  Not just because of Maddy.  I am a better person because of Bryon McKim.

BCM 08-28-1985 – 08-21-2016

“Don’t cry because it’s over. Smile because it happened.” ~Dr. Suess

 

Widow at a wedding

This past weekend, two of my closest friends got married.  I love these two people so much. I can not stress enough how much of an honor that my daughter and I got to be a part of their day.  The we were with Bryon and me on the best days of my life and they didn’t leave my side through the worst days of my life.  While I would do the same for them, I  prefer that the days be happy. 

The wedding was held at the lovely Otesaga Resort in Cooperstown, NY. I wish I could share more details but I was chasing after my daughter.  Please take my word for it when I say that this wedding was epic.  

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“I do myself, Mommy!”

 

The weather was warm for December.

Everything was beautiful; the bride, her dress, her hair, the music, the guests.  

The food was amazing.  And there was an open bar.  

I got to see lots of old friends and I made some new friends.

But my heart was heavy all night.  Because Bryon was not there.

This is not the first wedding I have gone to since Bryon’s passing.  My Maine best friend got married last summer.  I meant to blog about it because it was a beautiful ceremony that deserves it’s own post and I hope to write about it before I visit her in Ann Arbor this spring.  

But that wedding was in Maine and that was my turf.  Some of my old friends I saw at that wedding had never even met Bryon (though that doesn’t lessen their empathy).  Both the bride and groom had lost their mothers in their 20’s and the only time I felt sad was when the father of groom gave a speech and mentioned the groom’s mother and if she were there.  My eyes teared up because it made me think of how Bryon isn’t going to be there when my daughter gets married.

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I was very anxious about this wedding but I kept those feelings to myself. I felt selfish for even having these feelings. Weddings are happy affairs.  There is very little I do not share with the bride but I wasn’t going to burden her with my grief leading up to her big day.  Especially when I know it was hard on her that Bryon wasn’t there.  

(And to note, I have discussed this with the bride after the fact.  She is not going to be blindsided by reading this).

A large portion of these guests knew Bryon.  There was no way I could even pretend he wasn’t dead or that I wasn’t a widow.  All through the night people approached me and said kind things about Bryon which I did appreciate.  Because enough time has passed from his death where sometimes I think people forget about him and the last thing anyone who is grieving wants is for their loved one to be forgotten.  

I have come to the conclusion that it was a good thing my daughter was there.  I spent the night chasing her and that prevented me from getting drunk and crying on the bathroom floor.  And that is not a flattering look for anyone.  Though chasing her did hinder my ability to take photos.

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“Mommy, why do I have two forks?”

There were so many couples at the wedding though I don’t know if that is true or if that was just my perception.  I started thinking back to my wedding day.  How pretty I felt in my dress.  How I felt when we had our first dance. We were so in love.  

There was no way that I could have foreseen exactly what “in sickness and in health” would entail.  Bryon would tell me that I nailed that vow.

I started to wonder if I would ever feel that way again.  Will I ever love again?  Will I ever love someone enough to marry them?  Will I have a second first dance and cut another cake?  Five years ago, when I married Bryon, I thought that was it.  We were going to grow old together.  Forever and always.  I never dreamed that this would be a possibility.

I know that I do want to love again.  I just don’t feel like I am done yet.  But is it even possible to feel that way about someone else?   Is it a glimmer of hope or an impossibility?

I honestly don’t know.

I know is that I need to learn to cope.  It is frustrating when you want to be happy and instead you are an emotion mess. 

Bryon might be gone but the sun stills shines.  My daughter still laughs.  There are people that I love that are still here.  There are still happy times.  I just need to accept that there will always be some sadness attached to all the happy moments.

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Late summer fun: Sunflowers and ice cream

I was supposed to go to Maine the last weekend in August but I needed to take my cat to the vet. I thought something was wrong with him. He wasn’t acting like himself and I was sure something was wrong with him.  After paying my not insignificant vet bill, nothing was physically wrong him.

So now my cat is on prozac.

It’s for the best.

And I missed my trip to Maine and my 20th high school reunion. I thought about trying to swinng it but I was too tired to do 16 hours of driving in a 60 hour period

So I wound up with an unexpected free weekend.  My close friend loves Sunflowers and asked if I would be up for a drive downstate to a sunflower field. I am always ready for an adventure and I love road trips so I happily agreed.

I wish I had a selfie to share but not a single one looked good.  For real.  My daughter wouldn’t look at the camera and I had my hair in my face.

After we looked at the flowers, we went to a farm stand.  It was crowded.  My friend told me that she wasn’t expected it to be crowded because she has seen too many Hallmark movies.  In Hallmark movies there is a ton of space.  Hallmark movies have ruined her.

Though we both agreed that that won’t stop us from watching them this Christmas.

After the farm stand, we decided to drive into New Paltz and get some ice cream.   We went to Hugeunot Creamery.  The ice cream was delicious and the staff was very kind and friendly.  The kids had ice cream cones  with sprinkles. They wound up all over the floor.  Part of me felt bad but part of me figured that it’s bound to happen in an ice cream shoppe.  My friend had a creamsicle float and I had an old fashioned hot fudge sundae.

On the way back, we stopped at a Samuel’s Sweet Shop in Rhinebeck which is owned by Paul Rudd and Jeffrey Morgan.  The kids had lollipops (though my daughter could only handle a few licks after eating ice cream) and I had a pretzel covered in Reese’s Pieces.  My friend got chocolate covered oreos.

It was a great day.  I am so glad my friend asked us to spend the day with her and it was fun to discover places in New York where I had never been.  I can’t wait for some Fall adventures with my friends.

Do you like to go on day trips?  Where do you like to go?

I can’t imagine

Today is one of those days that it is hard to write.  I struggle with what to say.  Nothing will be good enough.  It’s hard to write about the little things going on in my life after seeing all the footage of Hurricane Harvey in Houston, Hurricane Irma in Florida and with the anniversary of September 11.  I feel like nothing I say can do any respect for the these events or the people that these events have affected.

There are two things my mind travels to when thinking about these events.  One is empathy. I have been trying to put myself in those people’s shoes.  I have lived in the Northeast for all but 6 months of my life (3 months in England, 3 months in Southern Indiana-they called it Kentuckiana) and we do have some crazy weather here.  I have lived through hurricanes and blizzards- Hurricane Gloria, Hurricane Bob, Hurricane Floyd, Hurricane Irene and of course, the Ice Storm of 1998.  

I have had my world fall apart but I have never lived in a place where I had to evacuate my home.  I have never felt the agony of wondering if my home had been destroyed.  I have never had to decide what few possessions to take at a moment’s notice.  I don’t know what I would grab after my daughter and my cat. I have never been in a situation where all my belongings and memories were destroyed.  I have never been in a situation where my whole neighborhood was flooded.

I have never lived in a war zone.  I have never lived in a place where I saw buildings go up in smoke.  I have never lived not knowing if a loved one was alive.

I truly can’t imagine.

The other thing that has been on my mind and heart is the fact that as Americans we can be so hostile to each other.  Seriously, who cares what political party people belong to or what religion they are?  Or if they even have a religion?  Or what they’re income is?  We are so divided but whenever there is a disaster, we come together.  Why can’t we be like that all the time?  Why do we have wait until people’s lives our destroyed to show them kindness?

Little moments

This weekend I did the first of my long runs for my half marathon training.  My training cycle has gotten off to a slow but steady start.  I have joined a new gym called Metabolic Meltdown and I do those workouts on Monday, Wednesday and Fridays and I run on Tuesday, Thursdays and Sundays.  I was having trouble motivating myself by just running and I need more strength so I hope this plan works.  So far I have been enjoying it.

So on Sunday I took my daughter to the local university and did the 3 mile loop around campus, plus one extra mile.  

It was the longest four mile run I have ever done.

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First of all, since I have slacked off on my training, I gained weight and I was pushing a stroller with my almost 3 year old.

It was hot.

My daughter kept dropping things and I kept having to stop and pick them up.

I didn’t want my daughter to fall asleep on the run so I kept her entertained by singing Old MacDonald since we watch OutDaughtered all the time.  OutDaughtered is the show about two year old Quintuplets.  My daughter refers to the show as “Babies.”  All I hear is “I want to watch Babies!”  Anyway, there is an episode where they are singing, or supposed to be singing, Old MacDonald in a recital.  So my daughter and I sang Old MacDonald and my daughter kept choosing “chicken” so this Old MacDonald had a farm full of chickens.  Old MacDonald can thank for me sneaking in one cow and one cat.   

My daughter saw one of the Albany city busses and kept saying ice cream truck.  I told her it was a city bus, but she wouldn’t believe me.  I told her she would disappointed if we went over and tried to order ice cream.

But I made it through the run.  I think when I reach the six mile mark on my long runs that I will need to get a babysitter.  I can’t be pushing the stroller for 8 miles.  I will go nuts.

I was really wanting to get an iced coffee but I decided to stop and let my daughter run around the fountains.  She was so happy which made me happy.  Life is about the little moments.

My one fun night in New York City

 

Bryon spent the last two and a half weeks of his life in New York City.  I had him moved from our regional medical center because he needed better care.  It was two of the most optimistic and the most scariest weeks of my life.   I was optimistic because he had a world class medical team caring for him.  I was scared because he was still very sick and I knew that even if he survived, the road to recovery was going to be complicated.

I don’t usually think about my time in New York.  I mean, it ended with Bryon dying.  

Yesterday I was reading about how one of my blogging friends spent her birthday in NYC.  She spent part of her day in Washington Heights, which was the part of NYC where Bryon’s hospital was located.  

It dawned on me that I can’t ignore New York City forever.  Someday I will  have to return.  I may want to take my daughter to see the Rockettes or take her to the Natural History Museum.  Or the Bronx Zoo.  Or maybe I would go with my Spanish teacher friend to find an Argentinian restaurant.  Or to see The Bangles with Kimmy Gibbler and my Latin Teacher friend the next time they go on tour.  It would be ridiculous to avoid a whole city for the rest of my life because of what happened.  I will probably just avoid Washington Heights.

So I was reading my blogging friends birthday post and then I was on Facebook.  I checked “On This Day” and sure enough, it was a post about the one fun thing I did during those two and a half weeks.

My daughter’s Godmother came down with her (now) fiance and got hotel rooms in the Times Square area.  She was telling me all about the city as we drove downtown.  I am a small town girl from Maine after all.  We had dinner at a Mexican restaurant.  It was my one fun night in New York City.

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Margarita
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Tacos
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Seinfeld restaurant
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View from the hotel room

Though there were other good things about being in the city.

I had a family to stay with.  They didn’t even know me but they knew Bryon.  They welcomed me into their home and they were so kind to me.  They stay ended up being short but had Bryon survived, he might have been in the city for months.  They never once gave me a time limit.  I know they were rooting for the slow recovery.  It would worth a trip to NYC to see them and have them meet my daughter.

Bryon’s friends in NYC got to see him.  That was great.

The team was much more optimistic and Bryon’s spirits were the best they had been through the whole ordeal.  In Albany, Bryon was too depressed to facetime with our daughter, but in NYC, he was happy facetiming her.

Bryon still had his sense of humor.  It took me a week to figure out that I could take the express train to get to the hospital faster.  He shook his head and rolled his eyes at me.

But right now, NYC remains the city where Bryon died.  Maybe someday I will return but it probably won’t be anytime soon.

Recharging: Hiking at Thatcher State Park

Yesterday morning Kimmy Gibbler asked me if I wanted to go on a hike with the kids to Thatcher State Park.  I was game.  I had never been to Thatcher State Park but I have always heard it was a lovely place to visit.  My local blogging friend Melissa recently visited Thatcher Park and wrote about her trip.

I just had to make an emergency stop at Target to get a pair of sneakers for my daughter because I think I might have left them in Chicago.  Once we got a new pair of sneakers, (and some fruit snacks and some juice boxes and some bottles of water) we were ready.

We didn’t hike long or anywhere steep because we had small children with us, but it was still a really fun outing.   I look forward to many more!

Do you hike? Where do you like to hike?

 

The start of our love story 

July 31, 2008
Somewhere in cyberspace

Bryon: cool

  when are you coming in tomorrow?

4:59 PM me: Depends on when I wake up and get on the road 🙂

 Bryon: lol

5:00 PM me: I actually wish I had known this was going to happen. I originally wanted to take tomorrow off and come out Thurs and go to Cooperstown on Fri

  But it was not meant to be. No baseball hall of fame for me

 Bryon: its not that great.

5:01 PM me: overated?

 Bryon: yeah. but I havent been in a few years

5:02 PM me: Thanks for crushing my hopes…

 Bryon: thats me though, you may like it

  you should come out early tomorrow and go.

5:03 PM Its not far from albany

 me: I doubt it

 Bryon: doubt which part?

 me: Isn’t it like an hour away?

 Bryon: yeah.

 me: I doubt I will want to drive another hour after driving 8

5:07 PM Bryon: I would be interested in going again, I would go, and drive.

 me: But’s it’s lame…. 🙂

 Bryon: yeah but there is a great brewery in cooperstown

 me: so the truth comes out…

5:08 PM Bryon: lol

 me: when would I have to be out there if I were to do that?

5:09 PM Bryon: whenever, Cooperstown is an hour from albany, I have a meeting until 1, so whenever you would like.

5:11 PM me: Mapquest says it takes 7 hours and 23 minutes to get from Surry, ME to Albany, NY

  When does the baseball hall of fame close?


16 minutes

5:28 PM Bryon: sorry i was away there

  

  the hall closes at 9

5:29 PM me: I figured that out. Went to the website.

  I am used to Maine, where things close at 5

  🙂

 Bryon: that is why NY is better

5:30 PM me: If you say so…

5:31 PM Alright, I will plan to be out there around 2 or 3. That way I don’t have to get up at an ungodly early hour

5:32 PM Bryon: sounds good

​This is the conversation that led to our first date, brought to you by gchat.  What can I say? We are representative of the social media age.

I always teased him about this conversation, about how the Baseball Hall of Fame was lame until I said I wanted to go.  Bryon never tried to hide the fact that it was me he wanted to see.

 *  *  *

August 1, 2008
Cooperstown, NY
Albany, NY

Nine years ago today I went on my last first date.  I was a Maine girl in New York and her “friend” took her the Baseball Hall of Fame in Cooperstown, NY.  At first there was a work scheduling conflict but it ended up working out.

After going to the Baseball Hall of Fame, we weren’t ready for the date to end. So we had dinner at The Pump Station.  The after dinner, we weren’t ready for the date to be over so went to Mahars.  Then Lark Tavern.

August 2, 2008
Saratoga Springs, NY

Bryon and I were at the New York State Young Republicans Day at the Races.  We spent the day avoiding each other because we didn’t want anyone to know that something was going on between us.  But we snuck away to the paddock for some time alone together.

 *  *  *

August 3, 2008
Albany, NY

I say good-bye to Bryon.  I was sure this was going to be a fling.  None of this made sense.  He was seven years younger than me and lived three states away.  I mean, he just graduated from college and I was almost 30.

But love had other plans.  And we never looked back.

 

A conversation with NFL player and patient advocate Rolf Benirschke

Earlier this week, I had the opportunity to attend an event with NFL player and patient advocate Rolf Benirschke.  This event took place at the New York State Capitol and was put on by GOBOLDLY and New York Health Works.  The event was attended by a diverse group of people including legislators, legislative staff, researchers, pharmaceutical company representatives, representatives from healthcare organizations and patient advocates.  I was excited to have the opportunity to attend this event.  I am trying to learn as much as I can about health care and patient advocacy.  I attended this event with one of my best friends, Jen.  She is the New York State and Vermont Advocacy Director for the National Multiple Sclerosis Society.

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The event opened up with NY Assemblywoman Crystal D. Peoples-Stokes (D-Buffalo).  She talked about her experience working with hospitals in Buffalo and how they collaborate with private companies who are working bringing the latest medical technology into Buffalo Hospitals. She also shared a personal experience about a friend with lung cancer who was receiving a cutting edge therapy in New York City that was developed in Buffalo at Roswell Park Cancer Institute.  

Rolf Benirschke was in his second season as a kicker for the San Diego Chargers when he was diagnosed with ulcerative colitis.  In his third season, he collapsed on a cross country flight and had to have two surgeries and spent 5 weeks in the ICU.  Like Bryon, he lost part of his intestine and went into septic shock and had organs shut down.  He came close to dying.  Rolf states that he didn’t know why his life was spared, but he was given a second chance.  He got his position back with the San Diego Chargers and played for seven more seasons.  

Rolf also stated that while he was in the ICU, he received 80 units of blood.  This was in 1979 when blood screening wasn’t as safe as it is today.  Rolf contracted Hepatitis C.   Rolf was given therapies for Hepatitis C which worked.  He expressed gratitude because he knew that he was lucky.  He brought up how Arthur Ashe contracted HIV from a blood transfusion that he received while having heart surgery.

It was inspiring to see Rolf share his story because the only way we are going to make positive changes in our healthcare system and patient care is by education.

We are living in exciting times when it comes to medicine.  My job is in oncology data and I see it.  They can test some tumors for the specific markers within that tumor and a patient can get a treatment based on their specific tumor markers.  I truly hope that diseases with a grim prognosis will be curable in our lifetimes.  

Jen and I got a chance to speak to Rolf.  We discussed barriers to patient care and we discussed part of Bryon’s story.  I encourage everyone to get out there and learn about the healthcare system.  You don’t need to work in healthcare to learn about it.  You never know when you need to apply that information for your own care or that of a loved one.

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