Waiting

“For a long time it seemed to me that life was about to begin — real life. But there was always some obstacle in the way, something to be gotten through first, some unfinished business, time still to be served, a debt to be paid. At last it dawned on me that these obstacles were my life.

This perspective has helped me to see there is no way to happiness. Happiness is the way.

So treasure every moment you have and remember that time waits for no one. Happiness is a journey, not a destination.”

~ Alfred D’Souza

I have always been a person who has always been waiting.

When I was a child, I was waiting for high school because from what I observed by watching Saved by the Bell and Beverly Hills 90210, high school was real life.  Because after sporting events and lame school dances, it was all downhill.

When I was in high school, I was waiting until I could go off to college because college was real life.  I would be out of my small Maine town and I would study abroad in Europe.  I could immerse myself in the subjects I cared about such as History and French.

When I was in college, I was waiting for graduation because that was when my career was going to happen and possibly I will would meet my future husband.  I was going to earn some real money.  And life was going to begin.

When I was finally out of college, I was waiting for my career to take off and to meet that husband I dreamed about meeting.  But none of those things came with a college degree so I kept waiting.

Once I was in a relationship with Bryon, I was waiting to get engaged because then I would be planning our wedding and my life would begin.

When Bryon and I were engaged, I was waiting to be married and when I was a wife, then life would begin.  We could put the stress of wedding planning behind us and we can focus on our happily ever after.

Once I was Bryon’s wife, I was waiting to buy a house and become a mother.  We would become a family and raise our baby in our little house.

Once I became a mother, I was waiting to have our second child so we could be the perfect family with two kids.  Bryon had been working hard on a career as was I and we would buy a bigger house.  Then life would begin.  We would raise our two perfect children, maybe three and take them to whatever sports or lessons they had.  We would get a family dog.  We would go on family vacations.  Bryon had plans to become 1950’s dad and make our daughters dates uncomfortable.  Then the kids would go of to college to wait for their lives to begin and Bryon and I would grow old together.

Only life as I envisioned it would never begin.  I never once thought “once I become a young widow, then my life would begin.”  But my life is happening and for once, I am not waiting for anything.  I know I have a long life ahead of me but for the first time in my life, I am not eagerly anticipating the next phase of my life.  I don’t even know what I should be waiting for.  I don’t even know what my next phase of my life is.  I know I will see my daughter grow up but Bryon won’t be there.  I hope to be in a position to help people but I am not sure how I will get from here to there.

During my grief process, I have felt like there is a lot of waiting.  I am waiting for the pain to subside.  I am waiting for things to get settled.  I am waiting until I can think about everything that happened and not feel like I am being punched in the stomach.  I am waiting until I can talk about what happened without having my voice shake and tears welling up in my eyes.

I don’t know what to wait for.  My life has so many paths it could take.  I am not looking forward to the prospect of someday dating again.  But if I did, my life would follow a certain path, a path I am not ready to consider at the moment.  For the time being, I am actually looking forward to my time alone to figure out exactly who I am.  But since I don’t know who I am right now, I don’t know how to envision a future alone.  There are many facets of my personality I wish to explore and depending on which ones I develop could affect my path.

I spent 37 years waiting for my life to begin.  But I have been living my life this whole time and not living in the moment.  I spent my years with Bryon looking towards the future and that future never materialized.  I spent so much time waiting and not enjoying the life I was living and that life is gone.  I can’t go back and focus on those moments in the present.  I only have memories.  Memories, a future I am not waiting for and the present.  It’s a shame it took my husband’s death to teach me how to live in the present.

“On this day” should be changed to “More depressing sh*t”

I belong to a few widow(er) facebook groups and it comes up periodically that the “On This Day” feature on facebook is a minefield full of triggers.  The triggers aren’t just reminders of illness and death.  The triggers are also the happy memories because you are reminded of the life that you are missing.

Some days I didn’t talk much throughout my history on facebook.  But some days are chock full of memories.

On this day in 2009, I was attending the Midcoast Maine Young Republican Meeting.

On this day in 2010, I was having a bad day at work and wanted to go home and drink. Considering I was working in the ER, that sounds about right.

On this day in 2011, I was out of work for the weekend and I had a hot date.  Of course someone commented and asked what Bryon was doing that night.

On this day in 2012, I was at a Bruce Springsteen Concert at the Times Union Center with Bryon.  I also was pissed that the Red Sox blew a 9-0 lead and I wanted Terry Francona back.

On this day in 2013, I hated Windows 8. I still do.

On this day in 2014, I was wishing all Boston Marathon Runners Good Luck.

I apparently wasn’t doing anything on this day in 2015.

On this day in 2016, I had my first glimmer of hope.  I remember writing that facebook status and feeling relieved.  We were finally on the road to recovery.  I remember being told that he would probably be in the ICU for another month or so and then he would go to rehab for a couple months.

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But we now know that that road would never lead Bryon to recovery.  It’s like I can feel all the emotions I felt waiting for that road to recovery at the same time; the frustration, the anger, the sadness, the hopefulness, the desperation.  However, it is also mixed with the grief and emptiness I feel every day from Bryon’s death.

Those memories are always going to be there whether they are on Facebook or in my memory.  I can’t un-live it.  I can’t pretend it didn’t happen.  And I don’t want to forget my memories with Bryon.  We had too many good times.  I can only hope that as time passes, I can think about these memories without crying and being overcome with sadness.  I want to be able to look back and smile.

I must move forward and try to fill my future with happier memories with my daughter and my family and friends.

Honesty

I have tried to be honest about my grief through this whole process.  I usually do that in the form of blog posts such as this one.  I find that writing about my feelings helps me process them and I make my feelings public because it might help others. While it might only take you five minutes to read this blog post, it will take me hours to write this.  Sometimes those hours are spread over days.  I keep a written journal of sorts that I write down my thoughts and ideas that come to me as they are happening in their rawest forms and usually I review these journals when I write a blog post.  Sometimes my thoughts go straight on my google doc and I spent hours elaborating and organizing these thoughts.  I usually write about something that has bothering that particular week and I usually feel somewhat peaceful about that particular issue after I hit the publish button.  

There are times that a feeling comes on so strong and I can’t keep it in.  Like my blog posts, I need to get these issues out.  So sometimes it comes out in a post on social media.  Usually when I post on social media about something, I am upset and can’t wait to go through the process of writing a blog post.  When I post something in this state, I am venting.  I am not looking for sympathy nor am I looking for advice.  If I am looking for advice, I would be asking a specific question.  Usually when I post an emotional social media status, I don’t have anything left to debate or defend my position.

Usually the social media posts that spark the biggest reactions are those about religion.  There are some widows and widowers that never lose their faith in God and that is great.  I am happy for them.  I began my grief journey feeling that way.  I was actually fairly at peace when Bryon died but as time passed and I was left to deal with the grief, I was not comforted by God.  I have recently begun reading A Grief Observed by C.S. Lewis and Lewis speaks about feeling like God has slammed the door in his face.  That is how I feel and I own it and I am honest about it.  I don’t take my loss of faith lightly and I resent it when people imply that I have.  I actually was very distressed about it in the beginning.  Aside from a few rebellious teenage years, I have tried to have a close relationship with God.  Being a good Catholic girl was a huge part of my identity and I was distressed that I was losing my identity on top of losing my husband.

I know that the comments about God being good and God allegedly loving me are well intentioned, it is actually like salt is being rubbed in my wound.  I have also come to the conclusion that a lot of these well intentioned people truly don’t understand what I have lost and what kind of pain I feel every single day.  And that is a good thing because I would never wish this type of pain on anyone.

Being told that I need to realize that life isn’t easy comes across as disingenuous to me and it demonstrates to me that my point is being missed.   I lost my best friend and the love of my life after less than four years of marriage.  Can people who have not had that loss truly tell me that they know how I feel?  Bryon was robbed of  the life he was supposed to live, the career he was working on, the places he wanted to go to, and the years he was supposed to spend with me and my daughter.  I was cheated out of my Happily Ever After and my daughter was cheated out of knowing her father and all her years with him.  I am tired of being told that the God that stole my daughters father from her is “loving”.  She’s 2!  What could a 2-year-old do to deserve that?

Sometimes I wonder if they need to reassure me of God’s alleged love not because I need to be reminded but that they need to reassure themselves.  I also wonder of people’s motives when they are trying to convince me about God’s alleged love.  Are bonus points given out for saving the widow?  I don’t need another church or another religion.  I am Catholic and will always be Catholic to some level.  I don’t need a new parish.  I will forever be grateful for the parish priest at my church.  He was there for Bryon, my family and me even when God was not.

I know this post might offend some people but I have spent too much time over the past 8 months worrying that I was offending people and this has caused stress.  Before Bryon got sick and passed away, I had the energy to deal with someone if they said anything rude or critical or insincere and by “deal”, I mean fume about rude, critical and insincere comments.  I also held back a lot of my true feelings.  But I don’t have the energy to fume.  If you cause that kind of reaction from me, I am going to take a step back.  I am going to take my space.  Because I just don’t have the energy to deal with anything negative.

There are a lot of assumptions and expectations about who I am based on who I was.  I touched upon that here.  But I am done being defined by others expectations of who they think I am.  I have spent my whole life worried about what people thought of me and not wanting to offend other people.  I can’t do it anymore.  I can’t hold back who I am, take care of my daughter, work 40 hours a week and grieve all at the same time.  I have to put my daughter and myself first.

I know that this post may upset people but I need to take care of my daughter and myself.  And those who are my true friends will understand and love me wherever my journey of self growth takes me.   Maybe I will find my faith in God renewed.  Maybe I will become a Buddhist.  Those who love me will understand that I am smart and I am strong and I am don’t need to be told what to believe.  I spent 38 years letting others have too much of a say in my life.  I need to figure things out myself and I need to be honest to my myself.  And I need to figure it out in my time.  I am processing my grief and soul searching and I am confident that over time, I will figure out what path I need to take.  The path that is best for me and the path that will lead my daughter into being who she is supposed to be.  And a part of me is actually a excited about the process.  I apologize that my self growth might make you uncomfortable but I will not apologize for doing what is best for me.

The Easter that should have been

We spent last Easter together in the ICU.  You were not able to communicate but I sat with you.  Our daughter spent the day with my parents.  Your best friend and his wife came.  They brought me a plate of food.

This year I have to go to the cemetery to see you.

Easter should have been different.  You should have been here.

You should have been with us on Thursday during our daughter’s Easter egg hunt party at school.  Since your best friends son attends the same school, you should have been there cracking jokes with your best friend.

You probably would have tried to get her to see the Easter bunny but let me tell you, her fear is real.

You should have been here Friday night when we dyed eggs with our friend and her son.  You should have been the one wincing when our daughter dropped a cup of green dye on the dining room floor.

You should have been at the Easter egg hunt yesterday at your best friends house.

You should have been there to see our daughter play with her Easter basket this morning.  Don’t worry, your princess got a basket fit for a princess.

If you were here, we would have gone to church where we would have done all that rejoicing and being glad.  Our daughter probably would have worn a proper Easter dress instead of her Elsa dress with rain boots.  This year Elsa and I opted out.

If you were here, you would have cooked dinner.  You didn’t care for ham so it would have been some version of beef.  We would have used our wedding china.  This year I made ham and used the everyday dishes because I couldn’t bear to look at our wedding china and think about all the holiday meals we would not be having together.

If you were here, you would have eaten peeps and I would have told you that they were disgusting.

But you are not here and if I want to see you, I need to go to the cemetery.  Easter went on without you but your absence was replaced with pain.  A pain as large as your personality.  Since you went into the hospital on Easter weekend, I get to be reminded of that weekend on the date and on the holiday.  But all I know is that going forward, I get to think about what should have been.

Brunette Catholic, blonde Buddhist or somewhere in between?

I always thought I had a strong sense of who I was.  And I never questioned my own authenticity.  Yes, on the outside I am from a small Maine town but many people don’t realize that I spent the first 14 years of my life in the Boston area.  I spent a semester abroad in England when I was 21.  Besides Boston, I have spent time in London, Paris, Chicago, New York, Washington, D.C., Miami, Houston, New Orleans, Vegas and many other cities.  I am fairly educated and worldly.  I just try not to be pretentious about it.

I have always been a rule follower whether it was my Catholic religion or sitting in school.  I was not a kid who got in (much) trouble.  I did get caught daydreaming a lot but there was a whole world outside whatever window I was looking out of.  I can’t say I never broke the rules in high school but I pretty much did as I was told.  I did not drink in high school or go to gravel pit parties.  I rarely stayed out past curfew (though my parents were pretty lenient as long as I called) though sometimes I stayed the night at my best friends house because she did not have a curfew. This created a kind of late night loophole that I would take advantage of. (Sorry Mom and Dad!)

I stretched my wings a little bit when I was in college.  A few weeks into my freshman year I decided to get an eyebrow ring.  It was 1997 and it was before they became popular.  It actually looked good on me though I don’t think any picture exists.  I didn’t think it through because I was heading home the following week and figured I would just take it out when I was around my parents.  My parents never saw it (though my brother saw it and he kept threatening to tell them).  I realized that I was never going to have the guts to wear it in front of my parents and I couldn’t handle the pressure of living a double life so the eyebrow ring didn’t last.

And of course, there was the road trip my friends and I took to St. Stephen, New Brunswick just so we could go to the bars when we were 19.  I remember walking along the Saint Croix River, pointing to the Maine side and laughing because we “couldn’t drink over there but we can drink over here.”  I always think of that trip every time I hear “One Week” by the Barenaked Ladies.  I wasn’t a saint but I kept myself out of trouble.

I was a very hyper and annoying kid and somewhere along the way, I figured that I had to bottle up my true self to fit in with people.  I would just sit quietly because I didn’t want to become hyper and weird and annoying.  I chose to only open up to a few.  I liked to participate in structured activities so I only had to discuss the topics on hand.

After college, I started dating the guy who would later become my ex-boyfriend.  I think of him as kind of an anti-Bryon because he was the exact opposite of Bryon.  One could argue that Bryon was the over correction of this guy. I could probably write a whole post on him and what I learned from that relationship.   In very general terms Bryon was a Catholic, Republican, manly-man who loved sports while the anti-Bryon was a Protestant, Democrat, non-manly man who preferred science fiction to sports.  Another big difference was that Bryon actually liked me while the anti-Bryon did not.  I think I was someone who paid for dates for two and a half years.  He never embraced me for who I was and I spent two and a half years trying to be the woman he wanted.

After I broke up with the anti-Bryon, I got absorbed into the world of politics and most notably, the Young Republicans.  I embraced the lifestyle of Republican politics and I wore suits, heels, pearls and the Sarah Palin hairstyle.  I loved politics because it was like I was an actress playing a role.  I didn’t have to worry that I was shy and awkward.  Politics gave me a way to relate to people.  It was also during my time in politics that I learned conversation skills and poise.

Politics led me to the best years of my life.  My years with Bryon.  The years where I became a wife and mother.  And like everything else, being a wife and mother provided me with a role that I was more than happy to assume.  Bryon did love me for me but relationships are always filled with give and take.  Bryon had the successful career and I pretty much was content to live in his shadow.  It might have caused some contention between us at times but I don’t regret it. Especially since he apparently wasn’t meant to be here as long as the rest of us.

I have heard that during widowhood, you begin to question everything you once believed.  I thought I had myself and the world all figured out.  While I learned that I am much, much stronger than I ever gave myself credit for, I also learned just how much Bryon overcompensated for my weaknesses.  I don’t have him to cover for me anymore. I have learned that I can count on my family and I have also learned which of my friends are actually my family.  I have learned who I can’t count on (some were surprising) and which friends really weren’t friends. I learned that you can’t put all your faith into the healthcare system and that the healthcare system can fail you.  And I learned that God  doesn’t care if you did your best to be a good Catholic girl for over 30 years.

All those years of trying to fit into roles and groups has left me with a repressed free spirit.  I have always had a free spirit that gets antsy and wants to see the world.  It used to drive Bryon nuts when I wanted to day trip to anywhere, as long as it was out of Albany. He usually indulged me. I also have a creative side.  I am still in the process of trying to let those parts of me out.  I have been running.  I have been travelling.  I have been cooking new recipes and putting together furniture from IKEA.  I have been reading about Buddhism to try to stay Zen.  I have been in the process of changing over to natural cleaning and beauty products.  I plan to have a garden this summer and learn how to can vegetables.  I tried to dye my hair blonde but that didn’t work.  And don’t be fooled if you ever see all the books on my nightstand.  You might see titles that consist of history, religion, politics, business, memoirs, parenting and grief/self help but the last two books I read consisted of one by the Long Island Medium and the other was Jodie Sweetin’s memoir.  Candace Cameron Bure’s memoir isn’t proving to be nearly as exciting as Jodie Sweetin’s memoir.

I realize that I was just afraid.  I have been afraid of success and I have been afraid of failure.   I have been afraid to let people see the real me.  I had a clearly defined past and I have been afraid to stray from the expectation of who I am supposed to be.   I have been afraid that if I tried something different or learned about something different that it might change how I think.  And if I continue to be afraid, I will never fully live and I must fully live to be an example for my daughter.  So my daughter can grow into the woman she is supposed to be.

Tears in Heaven, ice cream, and Sleepless in Seattle

A few weeks ago I went to brunch with a few friends.  The food was delicious and we had a great time.  There was lots of laughter and stories and a few mimosas. Both of them were talking about their dating adventures (or misadventures) which I enjoyed hearing about them.  

But on the ride home I became really sad.  I had one grandmother who lived to be 90 and my other grandmother is 95.  I genetically have the potential to be stuck on this planet for another 60ish years and that is a long time to be alone.  But I got sad thinking that someday I might have to date again.  I started crying and the tears kept coming.  I did not ask for this.  I was happily married.  I don’t want to be alone for 60 more years but I also don’t want to date.  Why does life have to be so cruel?  Why did my happily ever after have to get ripped away from me when so many other people get to be happy?  Why does everyone else get to be happy and not me?

So I get home.  I post a sad status on my Facebook because I feel the need to vent and  some brave people comment and try to make me feel better and while I appreciate their intent, it never makes me feel better. Maybe I just need to stop sharing my feelings on Facebook.   I blast my sad songs list on Spotify (doesn’t everyone have one of those?) and eat some ice cream.  I blast Tears in Heaven and listen to it on repeat.  Then I do what I do when I am feeling incredibly sad.  I put on Sleepless in Seattle which lives on my DVR because I needed to hear Tom Hanks say  “Move on. Fine. That’s what I’ll do. I’ll just grow a new heart…I know. But it just doesn’t happen twice.”  Tears in Heaven, ice cream and Sleepless in Seattle, are like, my trifecta of grief.

One of my best friends must have seen that status because she messages me asking if I am okay.  She is one of the few friends that I don’t feel like I have to answer with “I’m okay.  Everything is okay.”  I told her I was sad and I was listening to sad songs and eating ice cream.  I did not tell her I was watching Sleepless in Seattle because I was nervous that she would have gotten into her car, drive over and delete Sleepless in Seattle off of my DVR and I can’t live without that coping mechanism.

Things have changed in the past month or two.  I am starting to come out of the widow fog but the grief certainly has not subsided.  I am still incredibly sad.  I am still trying to make sense of Bryon’s death.  Some days I begin to think that I am used to Bryon being gone while other days I still sit in shock and disbelief that he is actually gone.

When Bryon first died, I tried to come up with a timeline for grief.  I have always been a goal oriented person so it made sense that I would set goals for the grief process.  But it hasn’t worked that way.  The months have just been bouncing by and I have been unable to attain any of these goals.  I am still wearing my rings. A lot of our bills are still in Bryon’s name, his stuff is still taking up space in our house and I still haven’t shut off his phone.  My friend asked me if the fact that we talk about Bryon so much is holding me back and I said no because most of my thoughts are still consumed by him and his death.  I am afraid to stop talking about him because then he really will die.  Yes he is physically dead but his story remind me that he actually did live and I am not ready to let go of that yet.

Have I been moving forward?  I don’t think so.  I think I have been surviving and keeping myself busy by traveling and doing activities with my daughter but I don’t really think I am moving forward.  I am distracting myself.  I am waiting for time and grief to pass before I start living again.  I spend time with my friends and my daughter and I work, usually until the early hours of the morning as I put off bedtime every night because lying in an empty bed is just too painful.  I need to stop searching for happiness because I am just not going to find it.  I am just getting used to being sad and I need to embrace that because that is my life right now.  This is my normal and since I can’t set my own timeline for healing, I need to embrace that I am going to feel sad until the indeterminate time comes when I no longer feel sad.

So for the time being, I will continue to feel sad.  I will continue to cry when I think about what I have lost. I will still continue to distract myself.  I will continue to go on adventures with my daughter. I will still continue to spend time with those I am close to.  I will continue to try to check items off of my widow “to-do” list.  I will continue to try to find myself as an individual.  I will continue to do all of these things until eventually my grief subsides and all of this just becomes part of me and my story.

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Growing up without a Dad

The following post was not written by me.  My friend and high school classmate LeeAnne lost her father when she was 16 months old.  She recently shared some of her thoughts about growing up without her father on Facebook and graciously agreed to let me post them here.  I always appreciate her input because it gives me an idea of some of the things my daughter might experience.

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What It’s Like Growing Up Without a Dad? I’m not talking about the deadbeats in the world. They piss me off (sorry for the language). I’m talking about growing up without a Dad because he is forever gone. He’s forever gone because he is in Heaven (yes, I believe in Heaven. I have to because if I didn’t, none of it would make sense and I would live my life a very angry person). It sucks. Plain and simple SUCKS. I was 16 months and 23 days old when that tractor pinned my Dad. I was 16 months and 25 days old when he gained his angel wings and left me here on this Earth without him. If he was a deadbeat, it would be better. At least I may have some chance of finding him and seeing him and even being really mad at him for leaving me. But he wasn’t. He loved me. He wanted me. He planned on being there forever and ever for me. He didn’t choose to leave me. Deadbeats piss me off because while they have created a child and then just decided they don’t want to play the role of a parent, my Dad was robbed of something I’ve heard he was very proud to be. I can tell by the pictures I see of us that this is true. You can tell he loved me and wanted me to be happy and safe. When you lose someone at such a young age without memories of your own, you cherish photos. I mean cherish them. My Mom eventually had a boyfriend and they had my sister together which gave me a sibling and for that I’m grateful. However, my Mom’s boyfriend was far from the ideal stepfather figure. He didn’t like me. I didn’t like him. I haven’t spoken to him willingly since I moved out of the house on my 18th birthday. In ways, it sucked having a sibling because every day I got to see her and her dad together. Something I never had and always wanted. Father’s Day sucks. It’s just a 24 hour constant reminder of what you don’t have. As I got older, I’ve learned to try to embrace the day and consider it another day to spoil my Mom. She is my Dad in a way too. January 30th sucks because that was the day my Dad was born. September 8th sucks because that’s the day he left me. Father Daughter dances suck. I mean, as a Mom, I love watching my girls get that time with their dad but, the little girl in me is jealous as hell. Wedding Days suck because the moment your Dad walks you down the aisle and the infamous Father Daughter dance becomes your Mom walking you down the aisle and trying to keep you from melting down like a big baby because you just want your Dad. The dance becomes your Mom holding you and you guys talking about how much he is there but he’s not there at the same time (and trying to make sure our beads on our dresses didn’t get stuck together because that would be humilitaing). Your fatherly advice comes from your grandfathers but you are of course too young and “know everything and anything” to acutally listen and appreciate those words after they are gone. Taking your kids to “meet” their grandfather by taking them to stare at a stone with words and plant some pretty flowers, sucks. They ask questions and you have no answers. I wasn’t the only one he was taken from. He was taken from my kids as well. He would’ve been an amazing grandfather. I don’t have my own memories to hold on to and to comfort me on my bad days. I have other people’s memories and that sucks too. I love hearing about him and I love knowing about him but I’m so damn jealous of every single person who ever met him and knew him. I’m not the friend who you can turn to if your parent passes away because while I had the same thing happen, I don’t remember it. I can tell you how to live without a Dad though and that sucks that I can tell you that. I apologize for the long rant. My birthday is getting closer and it’s another reminder that the older I get, just means the longer I’ve missed out on him. Anytime I hear of a father passing away and has a young child left behind, my heart automatically opens up to that child. I know what they are going to go through for the rest of their lives. I just pray that they at least get a wonderful father figure that can help ease the pain and who can at least be there as someone to turn to. It may have been different for me if I had that. It’s ok though because for 16 months and 25 days, I had The. Best. Dad. On. Earth.

Maybe I should just be over it by now

It’s been over seven months since Bryon had passed and over a year since he was in the ICU.  I can tell that there are some people who can’t figure out why I am still grieving.  I can see the looks and feel the judgement.  Surely I should be over it by now.  I mean, in the normal world, seven months is a long time.  But I am beginning to think that time passes in a very different way in the world of grief.  In seven months there have been many milestones with my friends and family.  There have been new jobs, engagements and babies.  I have managed to function in a 40 hour work week and somehow I manage to remember to pay the bills each month. But for most of that time, I have been living in a fog.  The fog is starting to lift which presents its own set of challenges.  

The last time I felt alive was a Tuesday in late March in 2016.  Bryon had been in the ICU for 5 days and he had gotten an infection and things were going downhill quickly.  I called my father and he and my mother did the only thing they could think of that could possibly console me- they took my daughter out of daycare and brought her into the hospital to see me.  She was only 18 months old and had no clue what was going on.  She wasn’t talking yet, at least not in anything that could be considered part of the English language.  She sat on my lap and smiled at me as I hugged her.  Things at the hospital got even crazier so my parents brought my daughter home.  As my parents were leaving, I remember saying to my mother that if Bryon died then our daughter would be too little to remember him.  My daughter’s Godmother showed up.  We made some phone calls.  Bryon was rushed into emergency surgery and I was told that he might not make it through.  I can still remember exactly who was present with me in the private family room as we sat silently in fear while Bryon was in surgery.

My world was literally crashing down.  I didn’t know how this could be happening.  This didn’t seem real.  It was like someone took the floor out from underneath me and I was falling.  Bryon was such a strong and healthy person and now he was literally clinging to his life.  How could this have happened?  And why did this happen?  How am I going to live without him?

And at that moment, an emotional pause button was pressed.

From that moment on, for the next five months, I was in complete survival mode.  I was just trying to get through each day and do what I needed to do to get to the next day.  Some days I lived hour to hour.  I lived off of iced coffee, diet soda, those hershey ice cream cones from the hospital cafeteria and whatever food my friends brought for me.  I read fluffy literature, taught myself Sudoko and re-organized all my Pinterest boards.  I did what I had to do to advocate for Bryon and keep him alive.  My only other worry was my daughter but for most of that five months, my parents had pretty much given up their life in Maine and temporarily relocated to Albany to take care of my daughter.  For the weeks they went back to Maine, my friends in Albany stepped up and took care of my daughter while I was at the hospital taking care of Bryon.

The button remained paused when Bryon died and remained paused through the funeral.  The button remained paused during the weeks following his death.  It remained paused as I resumed my running and binge watched all seven seasons of the Gilmore Girls and five seasons of Parenthood.  It remained paused that night I drank too much wine and bawled during Jinger Duggar’s wedding.  It remained paused after all the countless times I watched Sleepless in Seattle and P.S. I Love You.  It remained paused as the United States elected a new president.  It remained paused as I went through the motions of “celebrating” the holidays and welcoming a new year. The button remained paused as I left my job at the hospital where Bryon was for four and a half months because going to the same place where Bryon had been sick was too painful and I started a new job working from home for another company.

I was in a survival mode and then the “widow fog”.  There is a theory that we are in the fog because the grief is just so bad and that is the only way the grief can be processed.  We need to be numb to survive. And now that emotional pause button has been hit again and my emotions are resuming.  It’s like I am back in the ICU again and my world is crashing down again.  I am left in the same spot.  This doesn’t seem real.  It is like someone took the floor out from underneath me and I am falling.  Bryon was such a strong and healthy person and now he is dead. How could this have happened?  And why did this happen?  How am I going to live without him?

Now that the widow fog is starting to lift, I am dealt with an avalanche of emotions that I have not been able to process over the past year and it’s like I am feeling all these emotions for the first time.  If you somehow wronged me during that time, I am feeling it now.  If you made a rude comment about my daughter, I am pissed about it now.  I also feel shame because there were people who cared and reached out and I was just too emotionally exhausted to answer all the texts and messages. I hope they understand that I was just too emotionally drained to even have a conversation.

I also am left to process exactly what happened.  Everything that happened to Bryon happened so fast and it was one thing after another, like dominoes.  I sat in his room in the ICU every day, praying and hoping for the best.  I struggled to stay strong, making sure Bryon did not see my fear or the tears.  It is now dawning on me exactly how sick he was and what an effect that has had on me. I saw Bryon go through things that no one should ever have to see their love one go through.  I think about those hours that I stared at the monitor that showed Bryon’s vital signs while he clung onto his life.  I am finally admitting to myself that I should never have had to ever see him suffer like that.

It has been over seven months since Bryon passed and over a year since he went into the ICU.  But while that time has passed in the real world, I am left dealing with a year’s worth of emotions in the present.  So maybe I should be over it.  But I am not.

Why am I doing this?

Yesterday my blog reached a milestone.  A milestone that I never would have dreamed of ever happening, let alone only after two and a half months.   Yesterday my blog reached 10,000 page views.  I never would have thought that my words about Bryon would go so far in such a short time.  

So why do I do this?  Anyone who knows me in “real life” would tell you that I tend to be a pretty private person who takes a long time to open up to people.  I usually prefer to keep in interactions with people at the superficial level.  Want to talk about the weather?  Sure!  Talk about emotions and feelings?  No way!  Before Bryon got sick, I kept all but a few people at an arm’s length.

So what has compelled me to share some of my most private feelings on the internet? If someone would have told me that I would be sharing some of my most personal thoughts for the whole world to see, I would have probably looked at them like they were nuts.  But here I am.  Sharing my personal thoughts in a place where anyone can see.   I am not lying when I tell you that it is one of the scariest things I have ever done.  I am most likely ruining my chances of ever getting a boyfriend (in the very distant future) because any potential suitors would likely find this blog during a google search and go running far away after reading this.  And I can’t blame them.  Run, Forrest, Run!

There are many reasons I pour my heart out on the internet.

I have barely begun to share most of Bryon’s story because it is still too painful for me to share.  But I feel compelled to tell Bryon’s story in an effort to help other patients.  I want to help people know how to advocate for themselves and I want to empower people to find the right knowledge so they can make educated medical decisions.  I want to help people know what kind of questions to ask their doctors and what to do if something just doesn’t seem right with themselves or with the health care that they might be receiving.  I want people to know why it is important to know their own health history and, if possible, that of their family members.

I feel compelled to share my story as a caregiver and an advocate because I want to help the family members and friends of the critically and terminally ill.  I was thrown into a situation where one day my husband was recovering from a minimally invasive surgical procedure to fighting for his life in the ICU a few days later.  I don’t think there is a word in the English language that could accurately describe how overwhelmed I felt during those weeks that my life came crashing down. I have a background in oncology data and oncology was one of the few medical specialties that did not play a role in Bryon’s care.  While I had more medical knowledge than the average person, I am not a doctor or nurse and I had to quickly adapt to all the new medical terminology and procedures.  Bryon also could not speak for himself while he was in the ICU and he depended on me to advocate for him.   And unfortunately advocating for patients is not easy.  As a caregiver, you need to be prepared to fight for your family member or friend.

I feel compelled to share my story because I want to help other widows and widowers.  Widowhood is a very lonely place.  It helps to read that we are not alone and that other people can relate.  I appreciate reading blogs and memoirs of widows and widowers, especially those who are further in the healing process because I want some sort of idea of what to expect down the road.  Since I benefited from the stories of others, I want to share my stories with the hope that it might help another widow and widower.

I want to share my story to help those who have gone through a trauma and/or have experienced the loss of someone important in their life.  Grief is grief regardless of whether it was a spouse, a family member or a friend and we can all relate and support each other.

I write because it helps me process my own emotions.  I was in the “widow fog” for several months after Bryon died and the fog didn’t start to subside until I started writing about my feelings and my experience.  Before I started writing, I could bottle up my emotions and ignore them for a later time.  This isn’t healthy.  Writing forces me to acknowledge what I am feeling at any given time and it forces me to deal with my grief instead of ignoring it.

I write because I must preserve as much of our story for my daughter.  She won’t have any first hand memories of Bryon and she will have to rely on the stories that are told to her.  I can already start to feel that my memories are not as sharp.  I feel a huge void that Bryon left but it’s getting harder to remember the little things.  I am fearful that if I don’t write things down then those memories will die with Bryon.

I hope to become a patient advocate someday.  I want to raise awareness for the issues that plagued Bryon and ultimately took his life.  I want to empower the caregivers of critically and terminally ill patients.  I share our story to meet others who have been in similar situations and have similar goals.  I write with the hope that I can expand my network so that someday I am able to accomplish my goals of helping people.

Not quite married, not quite single

I always envisioned being a widow to being someone that was my grandmother’s age. My Grandma Sullivan was widowed in 1990 at the age of 76 after 44 years of marriage.  (My Grandma Sullivan passed away in 2004 at the age of 90) My Nana Crowley was widowed in 2007 at the age of 84 after 63 years of marriage.  (My Nana Crowley is still alive and will turn 95 later this month) Both of my grandmothers lived or are living the life that you would imagine of a widow.  They play/played Bingo.  They both socialized.  Both of my grandmothers have/had large social networks and lots of friends.  Both of my grandmothers doted on their grandchildren (and in Nana’s Crowley’s case, great-grandchildren.)

My experience has been different.  I became widowed in 2016 at the age of 37 a month shy of our 4th wedding anniversary. The last time I played Bingo was on a cruiseship with Bryon.   And instead of doting on grandchildren or great-grandchildren, I am taking care of a 2-year-old daughter.

The thing about being widowed, especially at a young age, is that you are not quite married and you are not quite single.  I am no longer married but I don’t feel single.  I still can’t bring myself to take off my rings.  I didn’t ask to be here and I don’t want to be here.  It’s like I am in limbo between the two.  I liked being a wife.  I was pretty good at it.  Turns out I am really good at the “in sickness and in health” part.  I used to listen to my single friends talk about their adventures and mis-adventures in dating and I remember feeling relieved because I was happily married and I wasn’t going to ever have to worry about dating ever again.

The one question I get asked the most since becoming a widow is if I ever plan on remarrying.  I don’t blame people for being curious.  I would be curious if I weren’t me.  Neither of my grandmother’s remarried but they were much older than me.  They don’t make a good point of reference to me. To be honest, if you asked me that question every day, the answer would probably be different depending on the day.  What can I say?  I am full of contradictions these days.

Some days I am optimistic that I may love again.  It is referred to as “Chapter 2” in the widow world.  I am a romantic at heart and don’t want to believe that my love story is finished.  I do think my heart will be capable of loving again and some days I hope I do love gain.  I still feel like I have love to give.  I also to hope that I will experience being loved again.  I don’t think to date again or marry again is a betrayal to him.    I truly think Bryon wants me to be happy.  Bryon will always have a piece of my heart but I do think the heart is capable of growing and loving again.

However, on other days I am depressed and I feel that no man would ever love me like Bryon did and I will never have what Bryon and I had.  Of course, I forget that trauma and loss change you, permanently and forever.  I am not the same carefree, naive person I used to be and I never will be.  That version of myself went away when Bryon got sick and she died when Bryon died.  So even if I found Bryon’s clone with the same personality, it probably wouldn’t work.  I have changed.  But I think about the way Bryon used to look at me.  Will I ever find someone who will look at me the same way?

At times I don’t think I will ever remarry because I am not good at dating.  Good at being a wife, yes.  Good at dating, no.  I don’t even know where single people who are closing in their late 30’s go in Albany and even if I did know, where would I find the time?  I am busy enough with my daughter and work.  Also, Bryon was very well known and popular  in our town and will I always be looked at as his widow and not as my own person?  And I am not sure anyone would want to date me knowing that Bryon will always have a piece of my heart and I will always love him.

I don’t know what the future will bring.  None of us do.  I don’t know when I will be ready to date again, if ever.  Right now I am still in pain from Bryon’s death and I miss him too much.  Plus, I am still learning how to be a working single mom.  But the one thing I will say with certainty is that if I start dating again, I won’t be sharing it here.  I am very open about my grief but I feel some things are meant to be private.