Warm and fuzzy

Three of us girls and my daughter went out for breakfast the morning after the Kentucky Derby.  One of us had said that in the past, she felt like she was viewed as “Bryon’s friend” but after this weekend, she felt like she became part of our friends group in her own right. We all felt warm and fuzzy when we realized that.   

My friends observation hit me close to home because for years I felt the same way.  I moved to Albany in 2009 after Bryon and I had been dating for a year and he already has his social network.  Everyone was Bryon’s friend and I felt like I was his shadow.  Over the years, my friendships did start to evolve but I didn’t realize how strong those friendships were until my friends were there for me when I needed them the most.  They continue to be there for me, helping me heal.

Yesterday I wrote about all the love and friendship shared on Derby Day.  Today I feel like celebrating that love and friendship.  

In the past, I have written a lot about my girls.  But most of these girls are attached to guys. Really great guys.  These guys would drop whatever they were doing to help me with anything and I don’t give them enough credit in this blog.  Most of these guys were Bryon’s friends and many of us girls became friends through our significant others.  Now I think it’s safe to say that it is us girls who are the driving force behind the groups social calendar.   

I have realized that I have been looking at these friendships only through my own eyes and not the eyes of my friends.  My grieving process has made me self-absorbed at times.  I know my friends have been there for me and my daughter but I haven’t been able to fully appreciate that my friends have been there for each other too.  I am not the only one who has needed support during this time.  Each one of my friends has been grieving too and they have been there for each other as well as be there for my daughter and me.

So many other friendships have formed before my very eyes.  Older friendships have been strengthened. We have all been friends to varying degrees but Bryon’s death has brought many of us closer.  But we aren’t just friends, we are a family.  And we have been all along.  We just never realized it until after Bryon died. Bryon may not be able to be here for us but he gave us each other.  

We are one big, crazy extended family complete with adults, kids and pets as well as the biological families of our family and friends of friends.  I have noticed that since Bryon has passed, we make more time for each other.  Birthdays get celebrated as well as personal milestones.  We check in with each other more, even if it is just because it’s been a couple of days and we wanted to make sure everything was okay.  The ladies have a monthly brunch.  Everyone seems fully committed to be positive role models and trusted adults for the younger generation to look up to.

I love my family and I am so thankful I have them in my life.

First Annual Bryon C. McKim Memorial Derby Party

I have two words to describe Derby Day 2017.  

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The first word is Epic.

We all came ready to celebrate the two most exciting minutes in sports.

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There were old friends enjoying each others company.  There were new friendships formed.  Lots of laughter, celebration and happiness were in the air.

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There were lovely ladies in dresses, hats and fascinators.  

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There were dapper men in seersucker suits.  

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Delicious food was served- bourbon meatballs, pulled pork sliders, mini Kentucky hot browns, mint julep chicken skewers and chicken and waffle skewers.  Because we all know that food tastes better when it is served on a stick.

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Makers Mark Mint Juleps were consumed in special Bryon McKim souvenir cups.  So many Mint Juleps were consumed that the bar ran out of Makers Mark two hours into the party.  Bryon would be particularly proud of that.  

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There was a silent auction full of amazing items that were generously donated from members of our community.  The silent auction was accompanied by friendly competition to outbid each other.

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The second word is Bittersweet.  

We were having a great time but we all knew that this party would not be happening if Bryon was still alive.  If Bryon were still alive, we would have been having our annual Kentucky Derby party in our backyard.  The backyard party would have been at a smaller scale but just as fun.

Ultimately Bryon had to die to bring us all together to have a good time.

As much fun as I had on Derby Day, I would have given it all back if it meant Bryon would still be here.  But I think I am reaching the point in my grieving process where I am beginning to accept Bryon’s death as it is.  I have days where I still ask “why” but I know that even if I can figure out the “why,” it doesn’t change anything.  Bryon will still be dead.  And there is nothing that can change that.

We can’t change the fact that Bryon is gone but instead we chose to take a horrible situation and make the best of it.  Many people die without leaving their mark (pun not intended) on this world but Bryon made his mark (okay, pun was intended this time) and we made the choice to keep his memory alive.  Derby Day had the potential to be a very sad day but instead, we chose to celebrate Bryon’s favorite day of the year.  And we celebrated in true Bryon McKim fashion.  I am grateful that I had so many amazing people to celebrate Bryon’s life with.  We all remember what a difference he made in this world. He helped so many people when he was alive and we chose to continue his legacy and help others in his memory.

I want to thank the Bryon C. McKim Derby Party Planning Committee: Vince Casale, Lynn Krogh, Danielle Grasso, Joseph Hanson, Jennifer Muthig, Mike Utzig, Nick Wilock, Jennifer Armstrong, Mike and Natalie Kosar, Sara Stein and everyone else who assisted in the planning process.  I am awe of your talent and you ran this event like a well oiled machine.  You could run a small nation.  Bryon would be proud.

I want to thank our sponsors for supporting the event and all the business who generously donated items for our silent auction.  My daughter and I are very lucky to be part of such a supportive community who looks after their own.

I want to thank Wolff’s Biergarten for all your hospitality and help putting on this event.  You were great to work with and made our experience enjoyable.

And I want to thank everyone who came out to support our event to celebrate Bryon’s life and keep his memory alive.  One of the biggest fears that a grieving person has is that their loved one will be forgotten.  Thank you for reminding me that while Bryon may be dead, he did live.

I look forward to celebrating with you again in 2018.

Advocating for MS in the State Capitol

I had an amazing opportunity this week to advocate for people living with Multiple Sclerosis.  It all started a few months back when I told one of my best friends that the company I work for gives every employee five paid days to volunteer each year.  (Something more companies should do.)  My best friend is the Advocacy Director for the National Multiple Sclerosis Society serving New York State and Vermont.  Part of her job is to give people living with MS the tools they need to be advocates.  So I told my best friend that I have 5 volunteer days that my company gives me and I may as well use them and the MS Society is definitely a cause I support.  My best friend invited me to join her team when they spent the day at the New York State Capitol advocating for several issues that affect MS patients.

I have several friends who live with MS as well as a few distant family members that had MS but I never realized how little I knew about the disease.  Some of the things I learned included:

  1. The cost of medicine is astronomical and ridiculous.  A medicine that has been on the market for 20 years that was $8,000 thr year when it came out now costs over $80,000 a year.  So if someone needs this medicine and has a 20% coinsurance payment, they have to pay over $16,000 a year for the medicine.  I don’t know how it is reasonable to expect a middle class or lower class person to be able to afford that.  One of the people advocating said that they knew a middle aged person who had to move back in with their elderly parents because they couldn’t afford to live on their own and pay for their medication.  I remember complaining when the copay for my albuterol inhaler went from $20 to $40 and this is a harsh reality check.
  2. The lack of transparency from insurance companies can make it difficult for MS patients to be able to choose treatment.  Sometimes a drug may lose its effectiveness or require some trial and error but it’s hard for a patient to make that change if they can’t get a clear answer from their insurance company as to how much the out of pocket expense is going to be.
  3. MS patients don’t get to choose if they receive their drugs through the mail or at a local pharmacy.  Their insurance company makes that decision.  Some people like to get their drugs in the mail and it works out great but for other people it doesn’t work.  Sometimes the drugs are stolen and since they are expensive, the mail order pharmacy may be hesitant to resend them (it’s not Amazon.com who will usually resend an item that doesn’t show up). An MS patient usually has to jump through hoops to get the medication they need and any gap in medication coverage can cause big problems in their treatment.

I learned so much during this day.  In addition to learning about MS, I learned about the process of meeting with legislators and discussing issues and seeing how change could happen.  I was in awe of my best friend as she would talk to the legislators or their representatives.  It was amazing to see her in action.  My fun-loving friend got down to business!  I was also in awe of the MS patients who bravely told their stories to help themselves and others afflicted by the disease. At first I felt a little self conscious because I was “just a volunteer” when everyone else was an employee or they were living with MS but everyone welcomed me to the team.  And they answered my stupid questions too without making me feel stupid.

When Bryon was in the ICU, I had to learn very quickly how to advocate for him.  It does not matter how good the hospital is, one must stay on top of what the doctors are doing and saying.  I think the struggles I had are the same struggles that others have regardless of illness.  One of the things that always seemed to concern me was that the different teams of doctors didn’t seem to communicate and I heard that was also the case with MS patients.  MS patients have to see neurologists that specialize in MS and if they see another type of doctor, it is imperative that that doctor communicate with their neurologist because what might be a standard treatment for a healthy person may cause serious complications to a MS patient.

While a patient (or their family as was my case) should always be aware of what is going on, I know it was exhausting to have to stay on top of the doctors to make sure they had the correct up-to-date information.  But I had to do it.  I have a background in healthcare since my profession is in Oncology data but I can’t imagine how much harder it must be for patients and family members who do not have a background in healthcare.  Bryon could not advocate for himself and my heart breaks for the patients who don’t have family members who work in healthcare and don’t understand healthcare jargon.  I can’t imagine how lost they must feel.

After this experience, working to make sure patients and patients families have to tools to advocate for themselves is important to me.  I don’t want anyone to feel like they were hit by a steamroller like I was.  I hope I get more opportunities in the future to advocate for patients and their families and I thank my friends at the MS Society of New York for this including me.

Happy Birthday Grandma

I remember one summer day in the mid 1980s when I was in my grandmother’s backyard.  I was about 7 (and therefore my grandmother was about 73) and I was excited because my birthday was coming up.  I asked my grandmother what was her most favorite thing about birthdays and she responds “when it’s over.”  I couldn’t understand why someone would want their birthday to be over.

Catherine Ann Donahue Sullivan was born May 3, 1914 in Woburn, MA. She was the 6th child and 2nd daughter of two Irish Immigrants, Peter Donahue and Mary Duran. She attended Woburn Public Schools (she told me that Catholic School cost 50 cents per child, per week and my great-grandparents were too poor to send 9 children to parochial school). She went to nursing school during the Depression (total cost of nursing education in 1930’s including cap=$75. Total cost of Kerry’s Psychology book, spring semester 2001=$130. The look on my grandmother’s face when I told her that=priceless).  She married my grandfather in 1946 and went on to have 5 sons.

Even though I grew up two towns away from my grandmother, I didn’t start to become close to her until my grandfather died when I was in 6th grade. After that, every Saturday was spent at her house while my father and uncles took care of tasks around the house and I would play with my younger cousins. Though I was shy in general, I was very outspoken around my family and my grandmother used to like to egg me on. It was funny. I, um, developed a lot sooner than most girls and I hated it. I was kind of a tomboy and, let’s just say, “they” got in the way. I would complain about them to my grandmother and she would just tell me that, “Someday you’re doing to be thankful…” The jury is still out on that, Grandma.  Though Bryon definitely seemed to appreciate them.

My grandmother had 5 sons and one grandson before I was born. I ended up being the first of four granddaughters. My grandmother always told me she wished she had had a daughter but I made her thankful she didn’t.

My grandmother would always give me $20 whenever I visited. It was for ice cream. Of course ice cream at the local ice cream place, Breakers, only cost about $3. She would always make sure to tell me that “When I was a kid, we were too poor to buy ice cream. And there was no one around to give us ice cream money.”  When I was in college, Grandma was always giving me $20 for gas money (that was back when you could fill your gas tank for $20.)

My grandmother taught me that you can still be a lady and use profanity. My other grandmother taught me that a lady never uses profanity. Luckily, it all seems to balance out.

My grandmother taught me that it is okay to tell guys who give you unwanted attention to “piss off.” One time, when she was in her 80’s, she slipped on the ice and fell. Another old guy stopped and tried to help her and she told him to “piss off.” I asked her why. She told me it was because he had two girlfriends.

My grandmother also taught me that I can not go wrong dating Irish-Catholic guys. She did warn me to stay away from French men. In the 1930’s, when she was in her mid-20’s, she dated a French guy. He had the nerve to ask her to move to New Jersey but didn’t want to get married. She told him to piss off. Then, at the age of 29, she met my full-blooded Irish-American grandfather and married him when she was 31.

My grandmother spent her years as a nurse and her later years in politics.  My cousin takes after her as a nurse and is a hospice nurse which I think is one of the most noble jobs there is.  I seemed to inherit the political gene although I am on an indefinite sabbatical from politics. Like my grandmother, my mouth sometimes gets me into trouble.  She passed before she could see me run for Maine State House or see me run the Maine Federation of Young Republicans.  Though it drove her Boston Irish Democrat sensibilities nuts that I was a Republican.

It always made me sad that she didn’t live long enough to meet Bryon.  They would have understood each other and appreciate each other’s sense of humor.  I think Grandma would have approved even though Bryon was only one-eighth Irish.

I remember one time during Mass back home our priest was commenting that the generations of a family are like a chain and each one of us is a link in that chain linking the generations.  I remember when my grandmother died and my father mentioned that he was the only one that remembered his grandmother (my great-grandmother) as my living uncles were either too young to remember her or weren’t born yet.  My father is the only living member of our family that is linked to my great-grandmother and he provides that link to us and especially my daughter.  One person who links five generations.  As long as my father is here, that link exists but someday that link won’t exist.  Luckily, my father has stated that he plans on sticking around until he is 120 so that link should be around for awhile.

Bryon went into the ICU when my daughter was 18 months old and passed away a month before her second birthday.  My daughter won’t remember him and it is as if there are no links in that chain.  It’s like that direct chain has been cut clean but in a way, Bryon’s friends and I will serve the link between my daughter and Bryon.

So Bryon, Grandma, and also Grandpa, Papa, Uncle Peter and Uncle Brian, as long as I am alive, you will live on.  I will make sure my daughter knows you.  And if I am privileged enough to live long enough to meet my grandchildren and maybe even my great-grandchildren, they will know you too.  You will live on for generations.

And Grandma, I am still going to wish you a Happy Birthday in Heaven.  Even if you wish your birthday were over.

Grandma’s Obituary

Bryon C. McKim Memorial Derby Party

Derby Party 2013

Our first Derby Party was in the tiny townhouse apartment that we rented but that didn’t stop Bryon from wearing his seersucker suit.  We had some friends over and crowded into our little living room to watch the Derby on Bryon’s flat screen TV that was too large for our room.  We served bourbon meatballs, mini Kentucky hot browns and derby pie and Bryon made Makers Mark Mint Juleps.

Derby Party 2014 and 2015

The next year we had moved to our house and we were able to have a larger party.  We still made the bourbon meatballs, mini Kentucky hot browns and derby pie.  Bryon bought a little costume for our cat that had a jockey on the back.  Our cat hated that costume.  Bryon served Makers Mark Mint Juleps and bought an ice crusher that was from the 1980s.  I was always so worried he was going to lose a finger in that machine.

Derby Party 2016

Bryon was really excited.  He decided that he had had enough of that ice machine and was looking into renting a snow cone machine.  It would serve two purposes, make snow cones for the kids and he could use the crushed ice for his mint juleps.  He sent out his Facebook invites.

But the Derby Party of 2016 never happened.  Bryon was in the ICU.  I sat with him all day and watched the Derby coverage but by the time the Derby was on, Bryon was too tired to stay awake.  I was so sad that Bryon couldn’t enjoy his favorite day of the year but I told myself that it would be okay.  We’d be celebrating with our friends in 2017.

And now it’s 2017 and Bryon is not here.

But the party will go on.  Bryon wouldn’t have it any other way.

We will be dressed up.  There will be Maker’s Mark Mint Juleps.  There will be mini Kentucky Hot Browns and Bourbon meatballs.  There will even be chicken and waffle skewers.  There will be a silent auction for raise funds for the Bryon C. McKim Foundation and our daughter’s educational trust.

What is the Bryon C. McKim Foundation?

Our friends and I have been working hard to make sure that Bryon’s legacy will stay alive through the Bryon C. McKim Foundation. Bryon helped so many people when he was alive and he was never one to brag about it.  When he was in the hospital, people would visit and tell me stories of how he had helped him.  Even 8 months after his death, I am still hearing stories from people that he helped.

There is no reason that Bryon shouldn’t still be helping people even if he is no longer with us.   By helping people, Bryon’s spirit lives on when we help people.

Through the Bryon C. McKim Foundation, we will establishment scholarships to Siena College and Albany Law School.  Bryon was proud of his education and we hope to give that gift to others.

The Bryon C. McKim Foundation also plans to provide patient education to teach patients how to advocate for themselves.  However, some patients can’t advocate for themselves.  When Bryon went into the ICU, I had to advocate for him right away.  It was a scary place to be and I had to learn what to do quickly.  The Bryon C. McKim Foundation wants to give people the tools on how to advocate for their loved ones.

Tickets can be purchased at mckimderbyparty.com  You can also join the excitement on our Facebook event page.  We would appreciate your support in keeping Bryon’s legacy alive and ask that you purchase a ticket even if you are unable to attend.

We hope to see you on Saturday!

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