Nine months

Today I had the honor to write a guest post on Mohamad’s Around the World series. It was a lot of fun to write about New York’s Capital District.  You can check it out here.  

And if you are visiting here from Mohamad’s blog, I just want to say welcome and I hope you stay awhile!

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Bryon has been gone for nine months. The world is moving on without him and each day the world moves on, I feel a little bit more alone in my grief.  Widowhood is emotionally lonely even if you aren’t physically lonely.

I barely noticed Spring and Summer last year because I was sitting in the ICU with him. This year I am determined to enjoy Spring and Summer but when I sit on the front deck with our daughter, his absence is pronounced.

I miss him when I see other couples.  I am no longer whole. He was my other half and he has been ripped away along with my dreams and my future.  I don’t know why everyone else gets to be happy except me.

I work so hard at trying to stay positive and strong.  I know it’s what he would have wanted.  But sometimes I have to pretend I am positive and strong.  It’s what people have come to expect and I feel like they don’t want to know the truth.  And it can be exhausting.

No matter how much people try to understand, there is always some level of disconnect. People don’t understand how something as simple as a song can trigger sadness.

Sometimes I get tired of having to explain why certain things make me sad.

Sometimes I wish people would let me just be sad without making suggestions on how to fix my sad mood.  My husband is dead.  Why can’t I just be sad?  I’ve accepted that my sadness is now a part of who I am and why can’t people just accept that it is a part of me now?

I get tired of having to listen to platitudes and insensitive remarks.  I know people mean well but sometimes I get tired of the fact that it gets put on me that I have to accept that this is just how people are.  Why can’t it be other peoples responsibility to think before they speak and be a little bit more sensitive?  Is it really that hard?  Or am I really just expecting too much?

People seem to only like to hear about my grief when it’s empowering and inspiring.  The negative emotions of my grief make people uncomfortable and I get tired of feeling like I have to apologize for my emotions.  I envy those people because I wish I lived in a world where talk about grief makes me uncomfortable and I can avoid it.  I can’t avoid grief.  It’s my life.

I hate the fact that some days, I am almost used to Bryon being gone.  Each day that passes, he slips a little further away.   

Bryon is still dead

The leaves are starting to appear on the trees.  The tulips have been blooming.  The ice cream truck is starting to make its rounds.  Kay’s pizza is open but Bryon won’t be eating any sausage, pepperoni and onion pizza.  Because Bryon is dead.

Summer will come.  Bryon won’t be going to any baseball games.  Bryon won’t be watching any  fireworks.  Because Bryon is dead.

Our birthdays will come and go.  But Bryon won’t be here to celebrate.  He won’t be buying a ridiculous toy for our daughter and he will not be here to scheme on how to bring a three-year-old’s birthday party to the next level.  Because Bryon is dead.

Our anniversary will pass and Bryon and I won’t celebrate.  Because Bryon is dead.

Fall will come.  My favorite season.  Leaves will change color.  But Bryon won’t eat any apple cider donuts or take our daughter trick or treating.  Bryon won’t be here to cheer for his Buffalo Bills.  Because Bryon is dead.

The air will get colder and snow will fall.  Christmas cards will be sent.  But Bryon won’t be attending any Christmas parties or watching our daughter open any Christmas presents.  Because Bryon is dead.

Our daughter is talking up a storm.  She has graduated from the “No” stage into the “Why?” stage.  “I do myself” has been appearing in her vocabulary and it should be no surprise that it takes five times as long to leave the house.  And Bryon isn’t here to talk to her because he is dead.

Three weddings are coming up.  And Bryon won’t be here to celebrate them.  He won’t be making friends with bartender and he won’t be grumbling as I drag him out for a slow dance. He won’t be ranting to me if 1 Corinthians is read.  Because Bryon is dead.

All of our TV shows are in the next season and are sitting on our DVR unwatched because Bryon is dead.

Friends continue to get together.  But Bryon isn’t there to tell funny stories and make us laugh.  Because Bryon is dead.

My clothes have taken over the closet.  Bryon’s clothes are no longer hanging up.  They sit in garbage bags in the garage waiting to be brought to Goodwill.  Because Bryon is dead.

The world will continue to go on without Bryon.  People will get married.  Babies will be born.  People will fall in love.  People will fall out of love.  Houses will be bought and sold.  People will get promoted and switch jobs.  People will travel to far off places.  Sports teams will win and lose.  Elections will happen.  And Bryon will still be dead.

Our daughter will start school.  She will become who she is going to be and hopefully be ready for adulthood.  She will find out what interests her.  She will fall in love.  She will travel to far off places.  She will hopefully attain a higher level of education.   Hopefully she will become a productive member of society.  And Bryon will still be dead.

The world goes on and Bryon is still dead.

My friend Stephanie

I have never met Stephanie in person but we both belong to a Facebook group which was formed in 2011.  It consisted of a bunch of ladies planning their September 2012 weddings.  We discussed many things in that group such as floral arrangements, wedding hairstyles and seating charts.  After our wedding, many of us stayed in that group and since then we have bought houses, gotten job promotions and welcomed babies into the world.  We also give each other fashion advice, share recipes and we talk about a LOT of things that, like Vegas, will stay in that group.

I am the first widow of the group.

Well, sort of.

My friend Stephanie really is the first widow of our group.

Stephanie and I had a lot in common.  We are both New England girls and we love the ocean.  We both root for the Boston Red Sox and the New England Patriots.  We have both run for public office.  Despite the fact that she is a Democrat and I was a Republican, we understood each other and we always refer to each other as our “sister from another party.”  However, I never thought we would share the bond of being widows.  At least not this soon.

While the members of our online group come from a variety of backgrounds and each had our own love story, Stephanie’s story was a bit different.  Like the rest of us, Stephanie was marrying her soulmate, Chris.  But unlike the rest of us, Stephanie had a heart breaking story that preceded her happily ever after.  Chris is Stephanie’s second soul-mate.  Her first soul mate was her fiancé Stephen and he drowned in a lake in New Hampshire in 2010.

Now, I am just going to stop here and state that just because Stephanie and Stephen were engaged and not married does not disqualify Stephanie from widow status.  As far as I am concerned, she lost the man she was planning to spend the rest of her life with and it doesn’t  matter if they had made it legal yet.  If anything, engaged widows have to deal with some major challenges, especially if they did not legally have their affairs sorted out beforehand.  And to be clear, I have no idea if Stephanie had those challenges.  I didn’t ask her because it is none of my (or your) business.

Stephanie was about my age when Stephen died.  And she had to face the dilemma that every widow must face- do you move forward or do you let this destroy you?

Stephanie chose to move forward.  She met her next soul mate Chris shortly thereafter.  Stephanie says that falling in love again was scary because you know that love can be ripped away.  Stephanie was so happy with Stephen and she never thought she would experience that kind of love again.  When she started to have those feelings again, she realized that she could let this new love pass her by or she can see where it goes.  I am sure Stephanie is glad that she decided to see where this love would go.

Chris was extremely supportive of Stephanie during her time of grief.  Chris also let her incorporate Stephen’s memory into their life.  Stephanie states that she and Chris were comfortable creating a bridge between the relationships.  It makes sense since there was not breakup.  It was more like a transition.  When Chris and Stephanie got engaged, the center stone of her engagement ring came from the solitaire from her engagement ring from Stephen.  And on their wedding day, Stephen’s dad walked Stephanie down the aisle.

If I ever fall in love again, I hope my man would be as understanding and supportive as Chris.

I did ask Stephanie if she had any advice for other widows.  Here is what she had to say-

  • Don’t live according to anyone else’s timeline.
  • Everyone grieves differently and no one has the right to judge any of your decisions
  • Lean on people.  Friends and family genuinely want to help you.  Take them up on offers, but don’t be afraid to say no as well.  If you are not ready to go to a movie, have girls night, etc., it’s okay not to force it.
  • People will surprise you.  You will definitely find out who your real friends are.
  • It’s okay to seek professional help.
  • There is also an opportunity to do things you might not have otherwise done that you’ve always wanted to do.  Once the “widow fog” lifts, do what you have always wanted to do whether it is learn to paint, take piano lessons or go to law school.
  • You will be caught off guard by PTSD even years later.  Stephanie states that she was watching a movie a few months ago where the husband died and the wife was in his closet, crying in his clothes.  Stephanie says she lost it.

Whether my great love story has a chapter 2 or not, I will continue to look up to Stephanie.  As I said, she was my age when she lost Stephen and she chose to be resilient.  She went on to finish her bachelors degree and she just completed her first year of law school proving that you can always follow your dreams.  I hope I can be like Stephanie.  Today she and Chris are going on a well-deserved vacation to somewhere that requires passports.  Let’s all wish for them to have a great time.

If you want to read more about Stephanie and Chris’s love story, click here.

If you want to read more about Stephen, you can view his obituary here.

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Stephanie and Stephen
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Stephanie and Chris

My dirty little secret

Being a widow is hard.  We have to navigate a world that is not designed for us.  One of my online widow friends, Michelle, wrote a blog post about being Wonder Widow and Widow Super Powers.  (Check out her blog, she doesn’t bite).  Michelle writes about her experience when she was newly widowed and she was at a party and once people learned that she was a widow, they ignored her.  She says that a widow may feel invisible when around the NORMS. The NORMS being “Normal people living normal, non-traumatized lives.”  She and I had an exchange on Facebook where I may have ranted a little bit about the course of events in my life.  I apologized and she said not to apologize because ranting is good for the soul and I should just let it out.

So I am going to let it all out.

I will let you in on a dirty little secret of mine.  I am jealous of the NORMS.

I am jealous of people who have their spouses and are living a normal life.  I am jealous when I see anniversary posts on social media, especially for any anniversary after the 3 year mark because Bryon and I never got to celebrate our fourth anniversary.  I am jealous that happily married couples who get have the support of their best friends because my best friend is gone.  I am jealous of their intimacy.  I am not talking about sex though I am jealous of that too.  I am referring to the day to day comfortable intimacy that happily married couples have.

I am jealous of the families at my daughter’s daycare who are able to (or are planning on) giving their kids a little sibling. My daughter will never become an older sister.  We will never be the perfect family with a mom and a dad and 2.5 kids and a dog.  I am jealous that there are so many other families where the kids will grow up with their fathers because my daughter won’t have that.

I am jealous of new couples who get to embark on their life together, full of hope.  Jealous because I am not sure I will ever be healed enough to love again. I am jealous of the innocence other couples can have.  Maybe someday I will find a man that can look past my wounded heart and deal with all the complications that come with loving someone who has been through this kind of trauma.  But even if I let another man into my heart, I am always going live with the fear of him dying too.  The constant fear of “what if it happens again”?

I am jealous of older widows.  I am jealous that they got to spend decades with their spouses.  And I am jealous that all the widow resources in the community are geared towards them and not to young widows.  Older widows had decades to prepare for this, young widows have not.  And young widows oftentimes have small children to take care of on top of dealing with their grief but so much emphasis seems to be on older widows.

I even find myself jealous of other widows at times.  Sometimes I look at widows who lost their spouses suddenly and I am jealous because they didn’t have to watch their spouse suffer for five months like I did.  Sometimes I look at widows who lost their spouse after a long illness and I am jealous because they were able to talk to their spouses about dying.  Bryon was on a ventilator for the five months he was in the ICU and we weren’t able to discuss any of this.  We had so many things that went unsaid.  But I know deep down there is no good way to watch your spouse die.  It’s horrible no matter how it happens.

I am jealous of the NORMS who leave those comments on social media statuses.  The comments that are benign on the surface but stab a widow in the heart.  I am jealous that they get to live in a life where they don’t feel the need exercise that extra level of empathy.  I am jealous that they live in a world where they can be clueless to those suffering grief and heartbreak. Though part of me is glad that they can be clueless because it means they don’t know this pain.  And if someone is a repeat offender, I actually begin to feel sorry for them they can live their lives being oblivious to the feelings of other people.

I am jealous of people who have their faith.  I am jealous because my Catholic faith was a big part of my life and I lost that too when Bryon died.  I am jealous of those who have never had to have their faith tested.  And I am jealous of the people who have experienced trauma like I have and still have their faith.  Because right now I relate to C.S. Lewis in A Grief Observed where he asks where God is and why did God slam the door on him?  I am jealous of all the people that God did not slam the door on.  I am also jealous of the naivete of people who think I can just turn my faith back on, like it’s a simple light switch.

Why am I sharing this dirty little secret?  It’s human nature to want to put your best foot forward but my desire to be honest is stronger than my desire to put my best foot forward.  I need to be honest for everyone who thinks I am strong even if that means sharing feelings that portray myself in a less positive light.  I need to share my story as authentically as possible because other widows may be reading this and I want them to know that it is okay to feel this way.

But despite all these pangs of jealousy I feel, the happiness I feel is ten times as strong.  The joys greatly outweighs my jealous feelings.  Yes I have these jealous feelings but they  subside very quickly.  And my feelings of jealousy are not because I don’t want others to be happy.  I want everyone to be happy.  I don’t wish my situation or the feelings that come with being in my situation on even my worst enemy.  My feelings of jealousy are about the reality of what I have lost, mostly my lost dreams.  For the most part, my anger seems to have subsided so I will think occasional bouts of jealousy are an improvement to being full of anger as long as the bouts of jealousy don’t get out of hand.

My life didn’t turn out the way I wanted it to but I do have reasons to be grateful.  I have an amazing daughter.  I have friends and family who aren’t freaked out by my widow status and include me in their lives.  I have friends who aren’t going to be put off that I might be jealous of them because they are patient and understanding of my grief and stick by me as I weather all the ups and downs. At least the ones who really love me do.

I can’t complain because even nine months later, my core group of friends are still supportive of me.  They spent 5 months helping me survive when Bryon was in the ICU and they have spent the past 9 months holding me up.  I hope I am healed enough and can give back before the next big crisis in our group happens.

But until then, whether you are a NORM or not, please just remember to be kind and understanding.  It’s okay to talk to us.  Widows don’t bite.  We just might be sad.  We are dealing with some major emotions.  But we’d probably be the first one to be there to help you if something bad happens.

Bryon C. McKim Memorial Derby Party

Derby Party 2013

Our first Derby Party was in the tiny townhouse apartment that we rented but that didn’t stop Bryon from wearing his seersucker suit.  We had some friends over and crowded into our little living room to watch the Derby on Bryon’s flat screen TV that was too large for our room.  We served bourbon meatballs, mini Kentucky hot browns and derby pie and Bryon made Makers Mark Mint Juleps.

Derby Party 2014 and 2015

The next year we had moved to our house and we were able to have a larger party.  We still made the bourbon meatballs, mini Kentucky hot browns and derby pie.  Bryon bought a little costume for our cat that had a jockey on the back.  Our cat hated that costume.  Bryon served Makers Mark Mint Juleps and bought an ice crusher that was from the 1980s.  I was always so worried he was going to lose a finger in that machine.

Derby Party 2016

Bryon was really excited.  He decided that he had had enough of that ice machine and was looking into renting a snow cone machine.  It would serve two purposes, make snow cones for the kids and he could use the crushed ice for his mint juleps.  He sent out his Facebook invites.

But the Derby Party of 2016 never happened.  Bryon was in the ICU.  I sat with him all day and watched the Derby coverage but by the time the Derby was on, Bryon was too tired to stay awake.  I was so sad that Bryon couldn’t enjoy his favorite day of the year but I told myself that it would be okay.  We’d be celebrating with our friends in 2017.

And now it’s 2017 and Bryon is not here.

But the party will go on.  Bryon wouldn’t have it any other way.

We will be dressed up.  There will be Maker’s Mark Mint Juleps.  There will be mini Kentucky Hot Browns and Bourbon meatballs.  There will even be chicken and waffle skewers.  There will be a silent auction for raise funds for the Bryon C. McKim Foundation and our daughter’s educational trust.

What is the Bryon C. McKim Foundation?

Our friends and I have been working hard to make sure that Bryon’s legacy will stay alive through the Bryon C. McKim Foundation. Bryon helped so many people when he was alive and he was never one to brag about it.  When he was in the hospital, people would visit and tell me stories of how he had helped him.  Even 8 months after his death, I am still hearing stories from people that he helped.

There is no reason that Bryon shouldn’t still be helping people even if he is no longer with us.   By helping people, Bryon’s spirit lives on when we help people.

Through the Bryon C. McKim Foundation, we will establishment scholarships to Siena College and Albany Law School.  Bryon was proud of his education and we hope to give that gift to others.

The Bryon C. McKim Foundation also plans to provide patient education to teach patients how to advocate for themselves.  However, some patients can’t advocate for themselves.  When Bryon went into the ICU, I had to advocate for him right away.  It was a scary place to be and I had to learn what to do quickly.  The Bryon C. McKim Foundation wants to give people the tools on how to advocate for their loved ones.

Tickets can be purchased at mckimderbyparty.com  You can also join the excitement on our Facebook event page.  We would appreciate your support in keeping Bryon’s legacy alive and ask that you purchase a ticket even if you are unable to attend.

We hope to see you on Saturday!

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